I spent some time today catching up on twitter. I highly recommend TweetDeck, by the way. It's so much easier to manage tweets with it.
As I was getting caught up on twitter, I was messaging various people I encountered, asking them to sign our endometriosis petition.
It occurred to me that I hadn't asked steveweber to support our cause. For those of you who aren't familiar with him, he is what I call a "twitter guru". Check out his twitter page and you see 21,175! When I first installed TweetDeck, he was very helpful!
Thank you to steveweber for retweeting #endo messages!!
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Showing posts with label Twitter. Show all posts
Showing posts with label Twitter. Show all posts
3/14/2009
3/13/2009
'Jeanne's Endo Blog' Thanks Tammey Of The Yahoo Group "LupusAutoimmuneSisters"
Sometimes people are just plain nice.
Recently, I met a woman on twitter named Tammey. We exchanged several messages and she was very friendly. So, I asked her the same question I ask everyone these days, "will you sign my petition?"
She kindly agreed to do so, despite the fact that she does not have endo. Then she volunteered to share the petition with her LupusAutoimmuneSisters support group and ask them to sign it too!
Twitter users, please send her a thank you tweet: Tammey
Sometimes people are just plain nice.
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Recently, I met a woman on twitter named Tammey. We exchanged several messages and she was very friendly. So, I asked her the same question I ask everyone these days, "will you sign my petition?"
She kindly agreed to do so, despite the fact that she does not have endo. Then she volunteered to share the petition with her LupusAutoimmuneSisters support group and ask them to sign it too!
Twitter users, please send her a thank you tweet: Tammey
Sometimes people are just plain nice.
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
3/04/2009
'Jeanne's Endo Blog': Endochick's Campaign To Get Julia Roy To Feature #endo On TweetWeek
The beginning portion of this blog post is reprinted with permission from Endochick...
If you aren’t following @juliaroy on Twitter, here’s why you should be...
Endochick recently informed me that Julia Roy hosts a show called TweetWeek.
1) She is the host of the YouTube show Tweetweek. The February 18th Tweetweek has had 2,501 viewers. With her Tweetweeks, she goes through the popular hash tags and events covered on Twitter during the week.
2) She is the self-proclaimed “an entirely digital girl.”
3) She has, as of the writing of this post, 17,378 followers! This is a staggering number!
4) To raise money for Twestival’s Charity: Water, Julia Roy auctioned off an evening of drinks and dinner with herself. The final bid was $1,549.00!!!
5) If we can all follow her this month on Twitter, and then DM (direct message) her and politely ask her to cover the #endo hash tag for National Endometriosis Awareness Month, we may see this happen.
The more we use that #endo, the more popularity it’s going to gain this month! Keep encouraging other women you know to use it! The more awareness we can bring to this disease the better!
In addition to following and direct messaging Julia Roy, there is another powerful twitter tool we need to be using:
#followfriday
According to Mr. Tweet, #followfriday is the biggest trend, by far, with twitter hashtags at this time.
Here's the kicker. Few people seem to be following the "rules" and using #followfriday just on Fridays! In fact, since I installed TweetDeck, I see #followfriday tweets popping in all day, every day. Today, I saw a tweet where the woman (SerendipityJane) came out and acknowledged that she was purposely not following the Friday "rule". So, I'm figuring, why should we be the one ones following the "rules" and waiting until Friday?
So I just sent this tweet and I'll post it here as an example:
@SerendipityJane Jane inspired me to break rules. Here's who I'd love ppl to follow: @endochick @momtojake @jeanneendo #endo #followfriday
@endochick is Endochick
@momtojake is Melissa Ralston
So if you have twitter, doing Follow Friday is very easy. Simply write a tweet listing the people you want others to follow. (The people you listed need to be on twitter and you listed them by their twitter name, as I did above). That's it. That will direct traffic to those bloggers. Think of it like a "referral".
OK. Let's get twittering! Don't forget to mark endometriosis-related tweets with #endo!
*MARCH BLOGGING MADNESS FOR ENDOMETRIOSIS AWARENESS*
UPDATED:
I just posted this comment on Endochick's blog post about Julia Roy:
Endochick,
I just emailed Julia Roy and copied you on it!
Her email address is:
julia@undercurrent.com
Her blog is:
http://www.juliaroy.com/
I just posted a comment on her last Tweet Week post! There was no comment moderation... it posted immediately. So even if she doesn't mention #endo on her next Tweet Week, we may get some decent visibility simply from readers of her blog looking at the comments!
Here was my email to Julia Roy:
Dear Julia,
I am one of the 89 million women and girls affected by endometriosis.
Endometriosis is more common than AIDS and cancer!!
(Source: Ohio State University Medical Center)
In late February, I posted my 2nd video. In it, I asked people to use this hashtag for all endometriosis-related tweets:
#endo
It has really caught on and many people are using it now.
March is Endometriosis Awareness Month. My fellow endo bloggers/patients and I desperately want to increase awareness about this serious illness!!
My endo started at age 13. Currently I’m 40. So I’ve been living with endometriosis for 27 years.
My friend and fellow blogger Endochick, of Endometriosis: The Silent Life Sentence was the one who told me about your show.
We would be ecstatic if you could feature this:
#endo
...on your Tweet Week show!
Endometriosis Awareness Petition
We have hundreds of signatures... many with heartbreaking comments...
Thank you SO much for considering featuring #endo on your show. Endometriosis affects SO many but does NOT receive the attention it needs and deserves! So many women and girls are suffering in silence.
Please help us educate the public and connect women to their fellow patients!
This is one of the messages we’ve been tweeting quite a bit: “MARCH BLOGGING MADNESS FOR ENDOMETRIOSIS AWARENESS #endo PLEASE RETWEET!”
We appreciate your help!
Jeanne
Finally, here is what I posted on Julia Roy's blog about our wish to have #endo featured on her Tweet Week:
Blog comment response to Tweet Week - Episode 13
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Are you on Twitter?
Have you heard of Julia Roy???
If you aren’t following @juliaroy on Twitter, here’s why you should be...
Endochick recently informed me that Julia Roy hosts a show called TweetWeek.
1) She is the host of the YouTube show Tweetweek. The February 18th Tweetweek has had 2,501 viewers. With her Tweetweeks, she goes through the popular hash tags and events covered on Twitter during the week.
2) She is the self-proclaimed “an entirely digital girl.”
3) She has, as of the writing of this post, 17,378 followers! This is a staggering number!
4) To raise money for Twestival’s Charity: Water, Julia Roy auctioned off an evening of drinks and dinner with herself. The final bid was $1,549.00!!!
5) If we can all follow her this month on Twitter, and then DM (direct message) her and politely ask her to cover the #endo hash tag for National Endometriosis Awareness Month, we may see this happen.
The more we use that #endo, the more popularity it’s going to gain this month! Keep encouraging other women you know to use it! The more awareness we can bring to this disease the better!
Here is the comment I posted to Endochick's post:
Endochick,
Thank you so much for finding Julia Roy! As we discussed the other day, we should direct message her with requests to cover #endo on her show. The #endo twitter hashtag is really catching on and is now listed in the hashdictionary, thanks to Debby Bruck of Holistic Twitter.
If we spread the word to our endo sisters and enough people send messages to Julia Roy, we can make this happen. We have to get as many people as possible to message her, though, because she has LOTS of followers!
So we need to get the word out to other endo bloggers and endo patients AND ANYONE who supports the endo cause! Getting #endo featured on Julia Roy's show could really be huge for increasing awareness. With all of these coordinated efforts, something is going to pay off! We all just need to be determined and persistent!
THANK YOU! Now let's spread the word... email, Facebook, other endo blogs (comments), etc. We need help! We need more people messaging her. You and I have already sent her tweet messages... and we can do so again. However, we need others to join us.
In addition to following and direct messaging Julia Roy, there is another powerful twitter tool we need to be using:
#followfriday
According to Mr. Tweet, #followfriday is the biggest trend, by far, with twitter hashtags at this time.
Here's the kicker. Few people seem to be following the "rules" and using #followfriday just on Fridays! In fact, since I installed TweetDeck, I see #followfriday tweets popping in all day, every day. Today, I saw a tweet where the woman (SerendipityJane) came out and acknowledged that she was purposely not following the Friday "rule". So, I'm figuring, why should we be the one ones following the "rules" and waiting until Friday?
So I just sent this tweet and I'll post it here as an example:
@SerendipityJane Jane inspired me to break rules. Here's who I'd love ppl to follow: @endochick @momtojake @jeanneendo #endo #followfriday
@endochick is Endochick
@momtojake is Melissa Ralston
So if you have twitter, doing Follow Friday is very easy. Simply write a tweet listing the people you want others to follow. (The people you listed need to be on twitter and you listed them by their twitter name, as I did above). That's it. That will direct traffic to those bloggers. Think of it like a "referral".
OK. Let's get twittering! Don't forget to mark endometriosis-related tweets with #endo!
*MARCH BLOGGING MADNESS FOR ENDOMETRIOSIS AWARENESS*
UPDATED:
I just posted this comment on Endochick's blog post about Julia Roy:
Endochick,
I just emailed Julia Roy and copied you on it!
Her email address is:
julia@undercurrent.com
Her blog is:
http://www.juliaroy.com/
I just posted a comment on her last Tweet Week post! There was no comment moderation... it posted immediately. So even if she doesn't mention #endo on her next Tweet Week, we may get some decent visibility simply from readers of her blog looking at the comments!
Here was my email to Julia Roy:
Dear Julia,
I am one of the 89 million women and girls affected by endometriosis.
Endometriosis is more common than AIDS and cancer!!
(Source: Ohio State University Medical Center)
In late February, I posted my 2nd video. In it, I asked people to use this hashtag for all endometriosis-related tweets:
#endo
It has really caught on and many people are using it now.
March is Endometriosis Awareness Month. My fellow endo bloggers/patients and I desperately want to increase awareness about this serious illness!!
My endo started at age 13. Currently I’m 40. So I’ve been living with endometriosis for 27 years.
My friend and fellow blogger Endochick, of Endometriosis: The Silent Life Sentence was the one who told me about your show.
We would be ecstatic if you could feature this:
#endo
...on your Tweet Week show!
Endometriosis Awareness Petition
We have hundreds of signatures... many with heartbreaking comments...
Thank you SO much for considering featuring #endo on your show. Endometriosis affects SO many but does NOT receive the attention it needs and deserves! So many women and girls are suffering in silence.
Please help us educate the public and connect women to their fellow patients!
This is one of the messages we’ve been tweeting quite a bit: “MARCH BLOGGING MADNESS FOR ENDOMETRIOSIS AWARENESS #endo PLEASE RETWEET!”
We appreciate your help!
Jeanne
Finally, here is what I posted on Julia Roy's blog about our wish to have #endo featured on her Tweet Week:
Blog comment response to Tweet Week - Episode 13
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
12/28/2008
Jenni Saake's Tips For Coping With Infertility At Holiday Times...
Recently, I was thinking about how the holidays can be a particularly challenging time for infertile couples. With all of the holiday get-togethers (often with babies and small children present) and with all of the "holiday expectations" many face this time of year, I decided to contact Jenni Saake for ideas on coping tips for dealing with infertility at holiday time.
I didn't have an email address for Jenni, who I "met" online several months ago through National Invisible Chronic Illness Awareness Week.
Find more videos like this on Illness-Disability-Healthcare-Caregiver Ministry Network
So I sent her a twitter message asking if she had any ideas for writing a post about coping with infertility at holiday time.
Jenni Saake is the author of:
Hannah's Hope: Seeking God's Heart in the Midst of Infertility, Miscarriage, and Adoption Loss
Here is a site with information on her book, referenced above:
Hannah's Hope
After contacting Jenni on twitter, she sent me several messages back with feedback on my question. I really appreciate her quick response and I'm including links she provided here. Hopefully they will help readers struggling with infertility (endometriosis-induced or otherwise).
Here are the links Jenni Saake provided:
1)
"Surviving 'Parent's Days': 101"
This is an article written by Jennifer Saake. [This article is geared for Mother's Day and Father's Day but may also help when coping with other holidays, per Jenni].
2)
The Road Less Traveled: A Journey Through Infertility
[This article written by Meridith at the cited link].
3)
Great Books For Christmas Gifts For The Reproductively Challenged Woman
[This article written by Barbara Winters at the cited link].
To contact Jenni Saake, you can click link below to visit her on twitter:
Just click the "blogtalkradio" icon in the sidebar to access her seminar from last fall.
Hopefully's Jenni's links above and her blogtalkradio seminar will be useful for readers coping with infertility at this challenging time of year!
THANK YOU JENNI!
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
I didn't have an email address for Jenni, who I "met" online several months ago through National Invisible Chronic Illness Awareness Week.
Find more videos like this on Illness-Disability-Healthcare-Caregiver Ministry Network
So I sent her a twitter message asking if she had any ideas for writing a post about coping with infertility at holiday time.
Jenni Saake is the author of:
Hannah's Hope: Seeking God's Heart in the Midst of Infertility, Miscarriage, and Adoption Loss
Here is a site with information on her book, referenced above:
Hannah's Hope
After contacting Jenni on twitter, she sent me several messages back with feedback on my question. I really appreciate her quick response and I'm including links she provided here. Hopefully they will help readers struggling with infertility (endometriosis-induced or otherwise).
Here are the links Jenni Saake provided:
1)
"Surviving 'Parent's Days': 101"
This is an article written by Jennifer Saake. [This article is geared for Mother's Day and Father's Day but may also help when coping with other holidays, per Jenni].
2)
The Road Less Traveled: A Journey Through Infertility
[This article written by Meridith at the cited link].
3)
Great Books For Christmas Gifts For The Reproductively Challenged Woman
[This article written by Barbara Winters at the cited link].
To contact Jenni Saake, you can click link below to visit her on twitter:
A few months back, there was a seminar on blogtalkradio talking about "Medications, Illness, Fertility and the Desire for Motherhood" with Jenni Saake. (Her seminar is available in the blogtalkradio archives).Jenni Saake (aka "Infertility Mom")
Just click the "blogtalkradio" icon in the sidebar to access her seminar from last fall.
Related link:
Wednesday, September 10, 2008 Endometriosis Blog: National Invisible Chronic Illness Awareness Week - "Medications, Illness, Fertility and the Desire for Motherhood"
Hopefully's Jenni's links above and her blogtalkradio seminar will be useful for readers coping with infertility at this challenging time of year!
THANK YOU JENNI!
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
7/13/2008
Jeanne's Endometriosis Blog: My Shelfari Bookshelf, Poll On Topics Of Interest To Readers, FEEDjit Traffic Tools, and More...
Little by little, I have been adding to the tools you see in the sidebar of this blog.
One of the newest updates is called "My Shelfari Bookshelf". If you scroll down the right sidebar, you'll see what looks like a bookcase. The books I have put into this virtual bookcase don't necessarily pertain to endometriosis but I put them there because some endo blog readers may enjoy reading them as I did. Some of them were already "book reviewed" in previous posts on this blog (or were mentioned on the blog). Others are simply books you might like.
Those of you who have been following this blog for awhile have most likely noticed the FEEDjit "traffic map" tools I have used. I am consistently amazed this blog has gotten visits from all over the world. Here are just a few examples of places where this blog's traffic has originated: Serbia, Canada, South Africa, Australia, The UK, Mexico, The U.S., The Philippines, Singapore, and Malaysia just to name a few. I am amazed at how varied the traffic has been in less than 1 & 1/2 months of writing this blog.
As I mentioned in yesterday's post: "Endometriosis Topics: What Interests YOU??? Let's VOTE Using A SHORT Poll To Show What We Want To Read About Endometriosis!", I would GREATLY appreciate if endo blog readers will take a brief moment to VOTE using the POLL which I created to better understand what topics are the most needed and wanted by our endometriosis and chronic illness blog readers.
Today I accepted an invitation from my blogger friend, Tracee, to join Twitter. I signed up for it today and it's in the blog's sidebar.
Your feedback is very important to me! Please let me know your impressions of the blog so far...
I hope you all have had a great weekend so far. Please check in again soon as I expect some endometriosis news to be posted next week. Stay tuned! :)
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
One of the newest updates is called "My Shelfari Bookshelf". If you scroll down the right sidebar, you'll see what looks like a bookcase. The books I have put into this virtual bookcase don't necessarily pertain to endometriosis but I put them there because some endo blog readers may enjoy reading them as I did. Some of them were already "book reviewed" in previous posts on this blog (or were mentioned on the blog). Others are simply books you might like.
Those of you who have been following this blog for awhile have most likely noticed the FEEDjit "traffic map" tools I have used. I am consistently amazed this blog has gotten visits from all over the world. Here are just a few examples of places where this blog's traffic has originated: Serbia, Canada, South Africa, Australia, The UK, Mexico, The U.S., The Philippines, Singapore, and Malaysia just to name a few. I am amazed at how varied the traffic has been in less than 1 & 1/2 months of writing this blog.
As I mentioned in yesterday's post: "Endometriosis Topics: What Interests YOU??? Let's VOTE Using A SHORT Poll To Show What We Want To Read About Endometriosis!", I would GREATLY appreciate if endo blog readers will take a brief moment to VOTE using the POLL which I created to better understand what topics are the most needed and wanted by our endometriosis and chronic illness blog readers.
Today I accepted an invitation from my blogger friend, Tracee, to join Twitter. I signed up for it today and it's in the blog's sidebar.
Your feedback is very important to me! Please let me know your impressions of the blog so far...
I hope you all have had a great weekend so far. Please check in again soon as I expect some endometriosis news to be posted next week. Stay tuned! :)
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
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