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Showing posts with label hope. Show all posts
Showing posts with label hope. Show all posts

2/10/2009

Michael J. Fox's Message Of Hope Captures Key Idea For The Chronically Ill: Would You Go Back?

The other night, I watched a fascinating documentary on PBS. I'll talk about that in a moment.

First, I'm going to start this post with a YouTube video clip from a 2006 interview of Michael J. Fox by Katie Couric.



A fantastic Frontline 6-part PBS documentary called "MY FATHER, MY BROTHER, AND ME" aired February 3, 2009. The topic was Parkinson's Disease but so much of what was discussed could apply to many other chronic illnesses.

For some reason the code to embed the video clip here is not working. So I will include the links to the PBS site where you can view it online.

Michael J. Fox was interviewed for this documentary. I'm including two links below... one for the interview with him and another for the documentary itself (in which he's also interviewed).

The first link is to Dave Iverson's interview of Michael J. Fox. It's running time is 19:38. It is divided into 5 parts. I highly recommend watching the whole thing... but the 2nd and 5th parts are particularly interesting to me because Michael J. Fox covers a topic that many chronically ill patients can relate to. He talks about how he would never want to go back to his life before Parkinson's Disease and he says, "somehow I've been able process loss in a way that I see the things that fill those gaps". If you just don't have 19 minutes and 38 seconds to watch the whole interview, focus on these 2 sections:

2. His personal perspective on living with Parkinson's...
This is where he explains how he wouldn't go back to his life before Parkinson's.

5. "For me, right now, this is my life, and I wouldn't trade it for anything..."
This is where he ties up the notion that he is doing what he's meant to be doing at this moment in time and while he'd love to find the answers for Parkinson's (and other illnesses), right now he's doing what he's supposed to be doing (this is a paraphrase... watch the video for his exact words).

VIDEO LINK 1:

Dave Iverson's interview with Michael J. Fox in conjunction with the Frontline 6-part PBS documentary called "MY FATHER, MY BROTHER, AND ME"

I just love, love, love this interview. For so many of us with chronic illnesses, it can be too easy to slip into, "why me?" thinking. For many of us, this mindset slips in briefly during the especially bad times only to be replaced by a more positive outlook of hope and purpose the remainder of the time.

No one wants to be sick. However, to be chronically ill and constantly angry about it is not healthy. What I love about what Michael J. Fox says in this interview is that it is aligned with how I see myself in relation to my illnesses.

Of course I wish I could wake up healthy tomorrow. Who wouldn't? However, I wouldn't go back in time and "erase" any of my illnesses from happening... no matter how much they hurt or challenge me. As Michael J. Fox so eloquently describes in this interview, I believe everything that has happened to me is (my words here) "part of my path".

Here is a link to his foundation:

The Michael J. Fox Foundation For Parkinson's Research

Let's just take the 1st major illness I was diagnosed with. If I hadn't had endometriosis, I would not have been in endo support groups at the local level since 1992. Through these groups, I have met some of the strongest, smartest, most caring, most resourceful, most compassionate people I've ever met. These fellow patients have been by my side as I learned to advocate for myself (and others) when interacting with healthcare professionals. They have checked on me after surgeries. They have called and emailed me to share experiences for mutual support.

If I hadn't had endo, I never would have started this blog. Through this blog, I have learned so much, met so many fantastic people, and given/received so much support.

I completely understand on a fundamental level what Michael J. Fox is talking about. Chronic illness really does change the way one looks at the world. Some might automatically think this to be a negative thing. However, I agree with Michael J. Fox that this can be a very good thing!

One little phrase has gotten me through many years of serious adversity:

"Everything happens for a reason"...

This phrase can be misused and uttered to people at times when it is not helpful. However, this phrase has been EXTREMELY helpful to me in coping with all sorts of things. When bad things happen in my life, I tell myself "everything happens for a reason" to get through the moment. I may not be able to see the reason something happens anytime soon (or even ever) but there have been many times over the years where something happened that I did NOT like at the time. Then, I have gone on at a later time to see that it was best in the long run... or that it helped me learn & grow, or that the negative happening was necessary somehow.

I just love the way Michael J. Fox words it in his interview. It's a great way to look at things.

The link below is to view the complete Frontline documentary. While the topic may be Parkinson's, much of this show could really apply to many other illnesses as well.

By the way, Dave Iverson is the man who interviewed Michael J. Fox in the link above. Mr. Iverson also did the documentary below. He, his father, and his brother all have Parkinson's Disease.

VIDEO LINK 2:

Frontline 6-part PBS documentary called "MY FATHER, MY BROTHER, AND ME"

In the full documentary, watch for Michael J. Fox's comments about 2 minutes into the 6th and final "chapter" of the online version of this show.

I really found this documentary very interesting!

Once you choose hope, anything is possible.
--Christopher Reeve


This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

8/18/2008

Endometriosis Blog: Gratitude Moment!



Above is an image I wanted readers to have the pleasure of viewing. This symbol is called a mandala...

It was used with permission from Jennifer Jones at:

http://www.mandalaspiritart.com/

You can learn more about mandalas at the above site. Many more mandalas can be found there.

Today I wanted to post something simple but meaningful. I wanted to "lighten things up" with the beautiful image above... and I wanted to post a "Gratitude Moment" to two wonderful women.

I'd like to thank these two very special people!!!

These are two women who have consistently posted thought-provoking, supportive, insightful, hopeful, positive comments on this blog. If you look through the comments on most articles on this blog, you'll see one or both of them listed as having commented:

Alicia (aka "yaya")
Mckay k


These two women have been incredibly supportive of this blog and I wanted to dedicate a "Gratitude Moment" to each of them!

Each of them is also a blogger.

Alicia has endometriosis and infertility. She occasionally includes these as topics on her "Random Thoughts" blog. (She descibes her Yayastuff blog as --- "Random thoughts, Daily Thoughts, Life, Friends, Family, Nanny Job"):

http://yayastuff.blogspot.com/


Mckay k writes two blogs. One is on chronic illness and the other is about her Koi Pond/Garden. (She is an avid gardener and also has multiple chronic illnesses):

Chronic Illness Blog:

http://livingwithachronicillness.blogspot.com/

Koi Pond Blog:

http://blog.myspace.com/index.cfm?fuseaction=blog.ListAll&friendID=123987592

These two women are strong, intelligent, supportive, helpful, and kind. I am grateful to have them in my life. One lives nearby and another lives far away. Regardless of who lives where, both of these women have had a profound impact on this blog with their frequent comments and great observations/information!

I would like to publicly thank each of them for helping me be a better blogger and a better person! They are both inspirational to me!

THANK YOU Alicia! THANK YOU Mckay k!

PLEASE NOTE:

This was written last week. I was unable to access my computer and post this at that time. I will probably not be able to update my blog regularly for awhile. I will get back on schedule as soon as possible but wanted to finally get this posted.


This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

7/29/2008

Endo Blog: Dr. Randy Pausch Feature TONIGHT on ABC TV

According to Mckay k, an endo blog reader, there will be an ABC news special on tonight about Dr. Randy Pausch!

I highly recommend tuning in. I also recommend having a box of tissues handy. (I went through plenty during Diane Sawyer's interview with Dr. Pausch several months ago).

See Diane Sawyer talking about Dr. Randy Pausch here:

http://abcnews.go.com/Primetime/

I checked the ABC website and it appears this show will air at 10:00 pm tonight. Check your local listings to be sure.

This is a follow-up to the following post: "Sunday, July 27, 2008 A Tribute to Dr. Randy Pausch (The Last Lecture)".

If you get a chance to watch this program tonight, I guarantee it will be worth your time!

Thank you, Mckay k, for making me aware of tonight's special on ABC.

UPDATE:

Here is Randy Pausch's website for more information about pancreatic cancer and his inspirational battle with it. It includes more video clips, including his absolutely riveting testimony before Congress:

http://download.srv.cs.cmu.edu/~pausch/

He really made an impact on so many people!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

7/27/2008

A Tribute to Dr. Randy Pausch (The Last Lecture)

On July 25, 2008, a very special man named Dr. Randy Pausch passed on.

His legacy will remain in the hearts and minds of the millions of people he touched around the world.

You may have seen Randy Pausch on Oprah or watched his interview with Diane Sawyer.

Or you may not have had the pleasure of hearing this inspirational man speak about life, living, and dying with dignity and grace.

For those who have not had the privilege of seeing "The Last Lecture", I'm going to include the video of it here. It was posted on YouTube after he made his last lecture at Carnegie Mellon University (where he was a professor) and it since then became well-known around the world.

First there is a brief video clip tribute to Dr. Pausch. Then Dr. Pausch's the "Last Lecture video" is about an hour and 16 minutes.

I assure you that if can set aside the time to watch his lecture it will be well worth your time!

First, here is the tribute video that was posted on YouTube after his death by "khoof7". It was posted on YouTube on July 25, 2008 (running time 1 minute and 20 seconds):



The full video of "The Last Lecture" captured the attention of people around the world. I hope you'll find it as inspirational as I did... and as millions of others around the world have as well.

Here is the description listed on YouTube of the "Last Lecture" video (posted by "carnegiemellonu":

Carnegie Mellon Professor Randy Pausch (Oct. 23, 1960 - July 25, 2008) gave his last lecture at the university Sept. 18, 2007, before a packed McConomy Auditorium. In his moving presentation, "Really Achieving Your Childhood Dreams," Pausch talked about his lessons learned and gave advice to students on how to achieve their own career and personal goals. For more, visit www.cmu.edu/randyslecture.

Here is the video of "The Last Lecture". Its running time is 1 hour and 16 minutes and it is worth making time to watch it! It may well change the way you look at your life!!



Clearly, Randy Pausch's story touched many lives and inspired millions of people to live with purpose, to make a positive difference in others' lives, and to have fun while doing it. The legacy he leaves behind for his family is tremendous.

He painstakingly videotaped large amounts of pictures so that his young children will be able to see the videos as they get older and can better understand his life and his death.

Randy's wife was interviewed by Diane Sawyer as well. Jai Pausch's grace and eloquence in the face of such a tragic diagnosis/prognosis was awe-inspiring. Clearly Randy and his wife were soul mates.

He obviously did everything he could to prepare his family for what would happen after he passed on, as anyone who saw the moving interview with Diane Sawyer can attest to.

His bravery, positive attitude in the face of terminal illness, and determination to leave a meaningful legacy for his family (and for the world) will live on.

Randy Pausch made a meaningful, hopeful, positive impact on the world.

Here is the link for the Diane Sawyer interview with Randy Pausch:

http://abcnews.go.com/GMA/LastLecture/

The same link as above will take you to video of Randy Pausch delivering the commencement address to the Class of 2008 at Carnegie Mellon University before his death.

If you are interested in learning more about Randy Pausch, his book "The Last Lecture" is located in my virtual bookcase in the right sidebar. Just look for the My Shelfari bookcase and click on "The Last Lecture".

UPDATE:

Here is Randy Pausch's website for more information about pancreatic cancer and his inspirational battle with it. It includes more video clips, including his absolutely riveting testimony before Congress:

http://download.srv.cs.cmu.edu/~pausch/

He really made an impact on so many people!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

7/19/2008

Endometriosis Blog: HOPE Really Matters For Healing, Coping, & Managing Chronic Illness!

While reading through the excellent endo blog listed below (an awesome find!), I found yet another treasure! First see the endo blog that I first viewed:

http://i-am-not-endo.blogspot.com/

The above link is to a superb blog by a courageuous woman who has endometriosis. It's fascinating reading.

On her blog, I noticed a comment from another endo patient named Alex. Alex's comment on the endo blog included a link to her Harry Potter-inspired blog (see below). Since I LOVE Harry Potter (reading those books got me through a surgery recovery so nicely!!), I had to check out her blog:

http://mugglex.blogspot.com/

Anyone who has browsed through the "My Shelfari" virtual bookcase on my blog has seen that I have included the entire boxed set of Harry Potter there. Someday I'd love to afford the real set rather than the virtual one. Anyway, my local library has all of them so I can re-read them whenever I want. (I normally NEVER re-read a book but we're talking Harry Potter here)! Anyway, Alex has endometriosis too. So that got my attention and I skimmed through her blog next. I noticed a widget/tool that said simply:

The Foundation For A Better Life (or FBL for short).

So I clicked on it (the same red button that is now installed on this blog too)!! It's very cool! The red color grabbed my attention so I clicked on it on Alex's site and found a very cool website:

The Foundation For A Better Life (FBL)

Per the website above, The Foundation For A Better Life describes itself as follows:

"We are a non-profit organization dedicated to sharing the values that make a difference in our communities. We create public service campaigns that model the benefits of a life lived by positive values. In turn, we hope to inspire people to make values a part of their own lives, and then to communicate the benefits to others."

This site quotes Mother Teresa, features Gandhi and Einstein... and so much more! I highly recommend it and have installed the Foundation For A Better Life's red button widget/tool on my blog (just check near my traffic map and you should see it). Anyway, if you click the red button it will take you to their great site and you can check it out for yourself!!!

On the site, I found a video clip intended to be a TV spot for a public service announcement. It is about HOPE. I can't seem to get the video to post directly here. So you can view it by simply clicking on the link below:

http://forbetterlife.org/be_inspired/tv.asp?id=1095

This message of HOPE may (hopefully) give a bit of help to those having a day with pain flaring up, a day of exhaustion, or a day of utter frustration. I hope this "HOPE" video clip gives you some HOPE that you WILL get through your challenges and be stronger for it!

I hope you find this organization --- The Foundation For A Better Life (FBL) -- as intriguing as I did. Their site is really cool and loaded with things you may enjoy!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

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