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Showing posts with label PBS documentary. Show all posts
Showing posts with label PBS documentary. Show all posts

2/10/2009

Michael J. Fox's Message Of Hope Captures Key Idea For The Chronically Ill: Would You Go Back?

The other night, I watched a fascinating documentary on PBS. I'll talk about that in a moment.

First, I'm going to start this post with a YouTube video clip from a 2006 interview of Michael J. Fox by Katie Couric.



A fantastic Frontline 6-part PBS documentary called "MY FATHER, MY BROTHER, AND ME" aired February 3, 2009. The topic was Parkinson's Disease but so much of what was discussed could apply to many other chronic illnesses.

For some reason the code to embed the video clip here is not working. So I will include the links to the PBS site where you can view it online.

Michael J. Fox was interviewed for this documentary. I'm including two links below... one for the interview with him and another for the documentary itself (in which he's also interviewed).

The first link is to Dave Iverson's interview of Michael J. Fox. It's running time is 19:38. It is divided into 5 parts. I highly recommend watching the whole thing... but the 2nd and 5th parts are particularly interesting to me because Michael J. Fox covers a topic that many chronically ill patients can relate to. He talks about how he would never want to go back to his life before Parkinson's Disease and he says, "somehow I've been able process loss in a way that I see the things that fill those gaps". If you just don't have 19 minutes and 38 seconds to watch the whole interview, focus on these 2 sections:

2. His personal perspective on living with Parkinson's...
This is where he explains how he wouldn't go back to his life before Parkinson's.

5. "For me, right now, this is my life, and I wouldn't trade it for anything..."
This is where he ties up the notion that he is doing what he's meant to be doing at this moment in time and while he'd love to find the answers for Parkinson's (and other illnesses), right now he's doing what he's supposed to be doing (this is a paraphrase... watch the video for his exact words).

VIDEO LINK 1:

Dave Iverson's interview with Michael J. Fox in conjunction with the Frontline 6-part PBS documentary called "MY FATHER, MY BROTHER, AND ME"

I just love, love, love this interview. For so many of us with chronic illnesses, it can be too easy to slip into, "why me?" thinking. For many of us, this mindset slips in briefly during the especially bad times only to be replaced by a more positive outlook of hope and purpose the remainder of the time.

No one wants to be sick. However, to be chronically ill and constantly angry about it is not healthy. What I love about what Michael J. Fox says in this interview is that it is aligned with how I see myself in relation to my illnesses.

Of course I wish I could wake up healthy tomorrow. Who wouldn't? However, I wouldn't go back in time and "erase" any of my illnesses from happening... no matter how much they hurt or challenge me. As Michael J. Fox so eloquently describes in this interview, I believe everything that has happened to me is (my words here) "part of my path".

Here is a link to his foundation:

The Michael J. Fox Foundation For Parkinson's Research

Let's just take the 1st major illness I was diagnosed with. If I hadn't had endometriosis, I would not have been in endo support groups at the local level since 1992. Through these groups, I have met some of the strongest, smartest, most caring, most resourceful, most compassionate people I've ever met. These fellow patients have been by my side as I learned to advocate for myself (and others) when interacting with healthcare professionals. They have checked on me after surgeries. They have called and emailed me to share experiences for mutual support.

If I hadn't had endo, I never would have started this blog. Through this blog, I have learned so much, met so many fantastic people, and given/received so much support.

I completely understand on a fundamental level what Michael J. Fox is talking about. Chronic illness really does change the way one looks at the world. Some might automatically think this to be a negative thing. However, I agree with Michael J. Fox that this can be a very good thing!

One little phrase has gotten me through many years of serious adversity:

"Everything happens for a reason"...

This phrase can be misused and uttered to people at times when it is not helpful. However, this phrase has been EXTREMELY helpful to me in coping with all sorts of things. When bad things happen in my life, I tell myself "everything happens for a reason" to get through the moment. I may not be able to see the reason something happens anytime soon (or even ever) but there have been many times over the years where something happened that I did NOT like at the time. Then, I have gone on at a later time to see that it was best in the long run... or that it helped me learn & grow, or that the negative happening was necessary somehow.

I just love the way Michael J. Fox words it in his interview. It's a great way to look at things.

The link below is to view the complete Frontline documentary. While the topic may be Parkinson's, much of this show could really apply to many other illnesses as well.

By the way, Dave Iverson is the man who interviewed Michael J. Fox in the link above. Mr. Iverson also did the documentary below. He, his father, and his brother all have Parkinson's Disease.

VIDEO LINK 2:

Frontline 6-part PBS documentary called "MY FATHER, MY BROTHER, AND ME"

In the full documentary, watch for Michael J. Fox's comments about 2 minutes into the 6th and final "chapter" of the online version of this show.

I really found this documentary very interesting!

Once you choose hope, anything is possible.
--Christopher Reeve


This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

10/23/2008

Endometriosis Blog: Follow-Up To Yesterday's Post On Interstitial Cystitis (LINK TO VIDEO)

I'm including an abbreviated disclaimer here since I will touch on methods of diagnosing IC (see full disclaimer at the top of the homepage). Please consult your health care provider(s) for questions on treatment options for your chronic illness. Anything posted by me, or anyone who comments on my blog, should NOT be construed as medical advice.

This is a follow-up to yesterday's post on interstitial cystitis. Yesterday's post referred to a PBS documentary on interstitial cystitis. I just watched it online at the Healthy Body Healthy Mind website (see below) and it was really interesting. It's approximately 30 minutes long.

Just click the link below, click on "Women's Health" and you'll see "Interstitial Cystitis: Private Pain" about halfway down the list titled: "As Seen On Public Television"...

PBS Documentary "Interstitial Cystitis: Private Pain" on "Healthy Body Healthy Mind"

One thing I found interesting was that the potassium test was repeatedly mentioned as the means of diagnosing IC and there was no mention of "cystoscopy with hydrodistention" as being a means of diagnosing it. I have heard of the potassium test mentioned in the documentary but my IC was diagnosed (after 12 years of suffering) with a "cystoscopy with hydrodistention".

While I had had 3 previous cystoscopies by 2 different urologists, it was my 4th cystoscopy (by a pelvic pain specialist) that resulted in me finally being diagnosed, properly, with IC.

Since my diagnosis, I have had dramatic symptom relief with a combination of oral medication and bladder instillations.

The pelvic pain specialist I see treats many IC patients. His staff taught me how to self-catheterize so that I can do my own bladder instillations at home. This idea scared me at first but I have gotten used to it.

Some advantages for me of doing my own bladder instillations at home are:

* No driving to/from my pelvic pain specialist (about 45 minutes each way) for bladder instillations in between regular appointments...

* No co-pay for each treatment since there is not an office visit for each bladder instillation...

* The convenience of doing bladder instillations when I need them (according to my doctor's instructions)... rather than needing to be fit into my doctor's office hours...

There are different types of medications used for bladder instillations. My doctor has prescribed two different medications for instillation into the bladder.

I am also fortunate that my pelvic pain specialist had the foresight to order pediatric sized catheters for me. With my vulvodynia/vestibulitis, I can't imagine using anything else!

As I mentioned above, I take oral medication to treat IC as well.

In addition, I avoid acidic foods that can aggravate IC (something that is also mentioned in the documentary).

I thought this documentary was very well done. The part I found especially interesting was where they showed pictures of a normal bladder lining as opposed to the bladder lining of an IC patient. The difference in appearance was striking!

Related link:

Endometriosis Blog: Interstitial Cystitis Awareness Week October 20th-26th, 2008 (RE-POST)

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

10/22/2008

Endometriosis Blog: More Information About Interstitial Cystitis Awareness Week

Here is more info on interstitial cystitis that was just emailed to me today by my local IC support group. Just click the links below for more information. Everything below is copied straight from the email I received:

---------

There are a lot of good links here, but you need to go to each website to have them connect.

Copied directly from the IC Network’s email...

Interstitial Cystitis Network

It's IC Awareness Week

Please join us in celebrating Interstitial Cystitis Awareness Week 2008, a week full of activities to help raise awareness for this little-known bladder condition and recognize the challenges of living with IC. This year’s theme is “When the going gets tough, could it be ‘123 IC’? Living with IC is tough. People with this painful and little-known condition need support and understanding. By increasing awareness of the symptoms most commonly associated with IC – Pain, Urgency, Frequency – which we call “the 123 of IC,” we aim to help people ask “could it be IC?” sooner.

This week, the National Association of Nurse Practitioners in Women's Health (NPWH), the Interstitial Cystitis Network and Ortho Women's Health & Urology invite you to participate in the following activities:

MONDAY, October 20

• A brand new documentary on interstitial cystitis, produced by Healthy Body Healthy Mind, will begin broadcasting on PBS stations across the country (PBS), a follow up to a documentary produced a few years ago. It will feature David Kaufman MD, Jeffrey Dell MD and IC patient spokesperson Terry-Jo Myers. Contact for your local PBS station for broadcast times or visit the Healthy Body Healthy Mind. You can also catch a highlights of the documentary in podcast form at: All About IC.

• “123 IC” contest winners & 2008 IC Ambassadors announced on All About IC

TUESDAY, October 21

• IC Week Podcast: “Interstitial Cystitis 101

WEDNESDAY, October 22

• IC Week Podcast: “Talk to your healthcare professional when the going gets tough” with NPWH’s Susan Wysocki on All About IC

THURSDAY, October 23

• IC Week Podcast: “When the going gets tough, don’t let IC isolate you!” with ICN’s Jill Osborne on All About IC

FRIDAY, October 24

• Check out real patient stories and encouraging words on All About IC

For more information, please visit: All About IC. Please check out our Facebook and MySpace pages.

Don’t forget to pass this on and help to spread the word!

Ortho Women’s Health & Urology sponsors this week to help raise awareness about IC.

Bring IC Awareness Week To Your Local Community

A formal press release has been created for media outlets. Click here to view! I encourage each of you to share this by email with your local newspapers. Ask the health or lifestyle editors if they will do a story on IC in your community and, better yet, consider sharing your personal IC story with them. If you get interest, please let the editors know that the ICN would be happy to provide quotes, background information and more to help make that story a reality. They can contact Jill directly at: jill@ic-network.com or by calling (707)538-9442.

IC Support Leader Recognition

IC Awareness Week is also the perfect opportunity to express our thanks to those people who have made our journey so much easier, the local IC support group leaders. Talk about unsung heroes. IC support group leaders often work, with little or no help, to make meetings happen in their communities. They spend hours with patients in need on the phone or at the hospital. They raise awareness with their local newspapers. The advocate for the needs of IC patients with local doctors and the medical community. All for no pay and with little, if any, recognition. They are, in our opinion, the most important part of the IC community because they work at the local level and directly with patients.

When a support group leader finally retires, we have to make sure that they know just how important their efforts were. Case in point and one of my personal IC heroes, Molly Glidden, long time Boston support group leader who is stepping down this month. I’d like to take a moment to say “Thank You” to Molly for being such a great friend, for always being willing to help so many other patients and for working with me, behind the scenes, to offer support to some patients who were very, very ill. Molly is the epitome of a kind soul and she, along with countless other past and current support group leaders, deserves our recognition for a job very well done. Thank you for everything you’ve done Molly. You’re an IC hero!

We'd also like to say a fond farewell to Alice Terry who has, for many years, run the IC Support Group of Australia. She published their national IC newsletter and helped spread the word about IC throughout that country. That group is now being run by Dr. Katya Buc Stooke (Contact details below).

So please join us in using IC Awareness Week to thank your local IC support group leaders!! Give them a call, send an email, card or flowers. Better yet, ask if they can use some help in 2009! Remember, they can’t do it all by themselves. The more hands and minds involved the better!"

AND THIS....copied from ICA’s email news:

The website address follows:

Interstitial Cystitis Association

"The Interstitial Cystitis Association (ICA) would like to inform you about three exciting events sponsored by other groups that are taking place in the coming weeks. While these are not ICA-sponsored events, we thought these activities might be of interest to you.

Interstitial Cystitis Awareness Week 2008 October 20 - 24, 2008

The National Association of Nurse Practitioners in Women's Health (NPWH, a non-profit organization), Ortho-McNeil (the makers of Elmiron), along with the Interstitial Cystitis Network (ICN, a for-profit publishing company), invite you to participate in a week full of activities to help raise awareness for IC and recognize the challenges of living with it.

Click here to find out more about the 123 IC Campaign."

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

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