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Showing posts with label inspiration. Show all posts
Showing posts with label inspiration. Show all posts

9/03/2008

Endometriosis Blog: "Almost Rosey" -- The Healing & Supportive Power Of Music And Other Relaxation Techniques (Video Clip Included)

I thought it was time to lighten things up a bit. Sometimes taking a break from information-gathering, doctor appointments, and stress can help us cope better with endometriosis & other chronic illnesses.


I'd like to start by sharing a gorgeous photo I found awhile back:



Photo used with permission from Mimbrava - www.Flickr.com


This red rose photo ties together nicely with a post I've been wanting to write for awhile now. As many of you are already aware from what I have written previously I am a huge fan of Tori Amos, the musician.

It just so happens Tori has endometriosis. So I'm using that as my excuse to write a post featuring some lyrics from her song: 'Almost Rosey' (from the American Doll Posse CD).

Before I get into any lyrics or my interpretation of them and what they do to inspire me and to give me strength during the especially tough times, I just want to lay the foundation for WHY I'm writing about this here on the blog... (other than my love of Tori Amos' music).

Over 7 years of facilitating a local endometriosis support group, I have noticed that MANY of our support group members share a common thread. For some it has to do with upbringing. For some it's a personal philosophy. For others, it's the only way they know how to cope with this challenging illness.

The common thread I've noticed for most endometriosis patients is that they often:

  • Put others first before themselves

  • Forget to practice self-care on a frequent enough basis to maintain their health (or progress to a greater state of wellness)

  • Often they "run themselves totally ragged"


  • Let me be clear that I don't sit in judgment of anyone (!!) and I know how very difficult it is to balance home/personal life, work life (for those still well enough to pursue a career outside the home or those who manage to work from home), social life/obligations, chronic illness(es) and the many other commitments that take up our precious time nowadays. There never seem to be enough hours in the day!

    An endometriosis patient may be:

  • employed in the traditional workforce

  • disabled

  • unemployed

  • a stay-at-home-mom (SAHM)

  • a work-at-home-mom (WAHM)... [I know -- all moms work at home. By WAHM, I'm referring to women who work in the home via telecommuting, running their own businesses, etc...]


  • I have observed that ALL women nowadays (that I know) are feeling the pressure of many demands on their time and this typically just becomes much *more* challenging for the chronically ill.

    OK... back to some of the music that gets me through some of my roughest days! I should point out that the music that works for me may not be most effective for you for coping with illness, stress and/or anxiety. The important thing is that most of us have SOME sort of music we find relaxing, inspirational, supportive, or even cheerful. Sometimes the lyrics really strike us and provide extra comfort. Sometimes it's the melody, the beat, or maybe an outstanding vocalist. Many times it's all of the above.

    OK. It's time for me to list the lyrics for "Almost Rosey" and explain what they mean to me personally. They may certainly mean different things to different people but I'll talk about how the lyrics strike me. Obviously this is just one interpretation.

    *Let me give just a bit more background on why I'm including lyrics for this particular song.*

    Many women I know (from my local endometriosis support group, healthy friends & relatives, former co-workers, blogger friends, etc.), myself included, have times when they really push their limits physically, mentally, or both! Self-care is key. A support network of some kind is key.

    You may have heard phrases like "grin and bear it" or "put on your happy face" or "be strong/don't let 'them' know they've gotten to you".

    While there are certainly times in life when we all need to do things we don't want to do, to even do things we're concerned may cause injury or exacerbation of existing illnesses, and to do things that are simply necessary for basic functioning... there are definitely other times when it's in our best interest (and/or that of our loved ones... whether they know it or not!) NOT to push too hard and NOT to overwork! Knowing when to back off and when to push ahead is a tricky balancing act. Taking pains NOT to overdo can prevent suffering & sometimes even permanent pain afterwards, etc.)

    Many women have a REALLY tough time slowing down, pacing themselves, and saving precious energy for the things that REALLY matter!

    OK. Here's where this song is one of my favorites to play when I need a pick-me-up.

    Here is a video clip of an amazing live rendition of this beautiful song:





    Below are the lyrics to "Almost Rosey". I have bolded portions I find particularly helpful to me for insights into how people (women and men) sometimes "put on a happy mask", isolate themselves from support when they need it most, etc. My comments are in italics.

    I should note that simply reading the lyrics off the page may sound anything but "rosey" or cheerful. However, knowing Tori's body of work for over 15 years, reading between the lines of the lyrics, knowing she is about as far from a "phony" or "fake" person as can be, and hearing the beautiful melody and soothing sound of the music on this song softens it immensely. Tori is a complex person and her lyrics can be deceiving. For example, her talk of putting rose colored glasses on to cope with things is NOT, in my opinion, implying that one should stick his/her head in the sand!! Quite the opposite... Tori bravely faces things head on! My comments on the lyrics will be in italics next to the lyrics I've bolded in the song...

    +++

    » 'Almost Rosey' Lyrics

    [This Section features Lyrics of the Song 'Almost Rosey' from the Album American Doll Posse]:

    Just a minute of your time
    Yes I've been known to delude myself
    So let me put those rose colored glasses to the test
    (I believe this is her way of saying let's cope with these problems rather than avoiding them).

    Now is this real enough for you
    'cause blondes here don't jump out of cakes
    If that never impressed you much
    Come board this lunatic express

    Just why do they say
    Have a nice day anyway
    We both know they wouldn't mind
    If I just curled up and died
    Let's not give that one a try
    (I think this section is Tori's way of observing how fake people can be when they exchange pleasantries they don't mean, when they act insincerely, and when they generally disregard -too often - others' well-being).

    Chin up put on a pair of these roseys
    Raise those blinds
    Chin up a happy mask was never
    Your best disguise
    Chin up put on a pair of these roseys
    In no time you will feel almost fine
    (I believe Tori is offering coping skills to either herself or someone else. She seems to be trying to fight the urge to isolate and "close the blinds". She recognizes that stuffing emotions and putting on a "happy mask' is not healthy. She wants things to start looking up and believes things WILL get better).

    Almost rosey

    Now some girls here will huddle with
    No not footballers that are rich
    But will confide in small white sticks
    He bats as The Virginian Slim

    Then I tried once to comply
    With an authority that would
    Subsidize my wild side
    But at this altar was sacrificed

    Yes you can laugh a femme fatale
    In a bride's dress now married to
    The effortlessness of the cracks
    That lie now in between the facts
    (Here again I believe Tori is speaking out against dishonesty in any form... including being phony/fake or insincere).

    Now about when violet died
    The cause still unidentified
    She thought her love would be enough
    But you can't seduce seduction

    Her tentacles of endless want
    Reach through my corridors
    And tempt me to taste of her power
    I sober with the witching hour

    And when I hear of one more bomb
    Yes we have all been robbed of song
    And nightingales who throw their arms up
    When is enough enough?
    (To me this passage is pro-peace, for saving the Earth from irreparable harm caused by war and environmental issues. Obviously birds don't have arms but I think the point is clear that she's concerned about the condition the Earth is in and wants very much to improve it).

    ---
    [ Almost Rosey Lyrics @ http://www.toriamoslyrics.org/ ]

    Tori Amos
    Almost Rosey lyrics are copyright by it's rightful owner. This Tori Amos Lyrics
    site (http://www.toriamoslyrics.org/almost-rosey-lyrics-tori-amos.php)
    in no way takes copyright or claims the lyrics belong to us.

    © 2008 Tori Amos Lyrics.org, All rights
    reserved.
    ---

    See my post: Sunday, June 15, 2008 - What is My Connection to Tori Amos??

    This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

    8/18/2008

    Endometriosis Blog: Gratitude Moment!



    Above is an image I wanted readers to have the pleasure of viewing. This symbol is called a mandala...

    It was used with permission from Jennifer Jones at:

    http://www.mandalaspiritart.com/

    You can learn more about mandalas at the above site. Many more mandalas can be found there.

    Today I wanted to post something simple but meaningful. I wanted to "lighten things up" with the beautiful image above... and I wanted to post a "Gratitude Moment" to two wonderful women.

    I'd like to thank these two very special people!!!

    These are two women who have consistently posted thought-provoking, supportive, insightful, hopeful, positive comments on this blog. If you look through the comments on most articles on this blog, you'll see one or both of them listed as having commented:

    Alicia (aka "yaya")
    Mckay k


    These two women have been incredibly supportive of this blog and I wanted to dedicate a "Gratitude Moment" to each of them!

    Each of them is also a blogger.

    Alicia has endometriosis and infertility. She occasionally includes these as topics on her "Random Thoughts" blog. (She descibes her Yayastuff blog as --- "Random thoughts, Daily Thoughts, Life, Friends, Family, Nanny Job"):

    http://yayastuff.blogspot.com/


    Mckay k writes two blogs. One is on chronic illness and the other is about her Koi Pond/Garden. (She is an avid gardener and also has multiple chronic illnesses):

    Chronic Illness Blog:

    http://livingwithachronicillness.blogspot.com/

    Koi Pond Blog:

    http://blog.myspace.com/index.cfm?fuseaction=blog.ListAll&friendID=123987592

    These two women are strong, intelligent, supportive, helpful, and kind. I am grateful to have them in my life. One lives nearby and another lives far away. Regardless of who lives where, both of these women have had a profound impact on this blog with their frequent comments and great observations/information!

    I would like to publicly thank each of them for helping me be a better blogger and a better person! They are both inspirational to me!

    THANK YOU Alicia! THANK YOU Mckay k!

    PLEASE NOTE:

    This was written last week. I was unable to access my computer and post this at that time. I will probably not be able to update my blog regularly for awhile. I will get back on schedule as soon as possible but wanted to finally get this posted.


    This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

    7/19/2008

    Endometriosis Blog: HOPE Really Matters For Healing, Coping, & Managing Chronic Illness!

    While reading through the excellent endo blog listed below (an awesome find!), I found yet another treasure! First see the endo blog that I first viewed:

    http://i-am-not-endo.blogspot.com/

    The above link is to a superb blog by a courageuous woman who has endometriosis. It's fascinating reading.

    On her blog, I noticed a comment from another endo patient named Alex. Alex's comment on the endo blog included a link to her Harry Potter-inspired blog (see below). Since I LOVE Harry Potter (reading those books got me through a surgery recovery so nicely!!), I had to check out her blog:

    http://mugglex.blogspot.com/

    Anyone who has browsed through the "My Shelfari" virtual bookcase on my blog has seen that I have included the entire boxed set of Harry Potter there. Someday I'd love to afford the real set rather than the virtual one. Anyway, my local library has all of them so I can re-read them whenever I want. (I normally NEVER re-read a book but we're talking Harry Potter here)! Anyway, Alex has endometriosis too. So that got my attention and I skimmed through her blog next. I noticed a widget/tool that said simply:

    The Foundation For A Better Life (or FBL for short).

    So I clicked on it (the same red button that is now installed on this blog too)!! It's very cool! The red color grabbed my attention so I clicked on it on Alex's site and found a very cool website:

    The Foundation For A Better Life (FBL)

    Per the website above, The Foundation For A Better Life describes itself as follows:

    "We are a non-profit organization dedicated to sharing the values that make a difference in our communities. We create public service campaigns that model the benefits of a life lived by positive values. In turn, we hope to inspire people to make values a part of their own lives, and then to communicate the benefits to others."

    This site quotes Mother Teresa, features Gandhi and Einstein... and so much more! I highly recommend it and have installed the Foundation For A Better Life's red button widget/tool on my blog (just check near my traffic map and you should see it). Anyway, if you click the red button it will take you to their great site and you can check it out for yourself!!!

    On the site, I found a video clip intended to be a TV spot for a public service announcement. It is about HOPE. I can't seem to get the video to post directly here. So you can view it by simply clicking on the link below:

    http://forbetterlife.org/be_inspired/tv.asp?id=1095

    This message of HOPE may (hopefully) give a bit of help to those having a day with pain flaring up, a day of exhaustion, or a day of utter frustration. I hope this "HOPE" video clip gives you some HOPE that you WILL get through your challenges and be stronger for it!

    I hope you find this organization --- The Foundation For A Better Life (FBL) -- as intriguing as I did. Their site is really cool and loaded with things you may enjoy!

    This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

    HAVE YOU SIGNED YET?? Please Sign Endometriosis Awareness Petition Below! Awareness YEAR-ROUND!