Gratitude Moment: Taking Time to Thank Tracee Sioux who has been a GREAT Supporter!

About 3-4 months ago, I stumbled across a blog:

http://www.sosiouxme.com/.

It's written by a woman named Tracee Sioux (pronounced "Sue").

Here's a picture of Tracee Sioux. (I hope she doesn't mind that I used her picture without asking her first but that would have spoiled the surprise and her picture is all over the Internet thanks to her blog so I don't think she will mind):

I found her blog simply engrossing. I had looked at numerous blogs before I found Tracee's but suddenly I found myself posting comments to her articles and basically joining in the discussions taking place on her blog about a variety of topics. (Tracee writes a blog about the topic of empowering women and girls and I had plenty to say about those issues).

Sometime in March, I emailed Tracee directly (not a post on one of her comment boards but an email to the address listed on her site). Since March is endometriosis awareness month and since Tracee's blog seemed to be quite active, it occurred to me that it would be REALLY cool if she might consider the possibility of posting some information about endometriosis on her blog. (It turns out she has two separate blogs but the www.sosiouxme.com link will get you to both of them).

Anyway I emailed her with some very brief info on endometriosis and asked if there was any possibility that she might consider writing something up on endometriosis and posting on her blog. I figured a blog targeting empowering women and girls would be a good fit for reaching the audience that could benefit from endometriosis awareness!

Tracee wrote back immediately and agreed to write about endometriosis on her blog. I was thrilled. She took some information I sent her and combined it with her own perspective on endometriosis and/or the management of women's pain. (There has been research done that shows women's pain is undertreated as opposed to men's pain. See the "For Grace" site for more information about this topic):

http://www.forgrace.org/women/in/pain_home/.

Anyway, Tracee then wrote not one but TWO articles (one on each of her two blogs) about endometriosis and/or pain management for women! I was very excited.

I was thrilled and honored to have the opportunity for increasing endometriosis awareness through Tracee's blog. I was excited at the opportunity for outreach to endometriosis patients and their loved ones, I was pleased for endometriosis to be covered on a blog that gets lots of traffic, and I was touched that my simple email request had blossomed into two articles that could stand to help endometriosis patients (and their loved ones).

I followed Tracee's blogs regularly for weeks (actually for months). In that time I started to really be inspired about the possibility of starting my own blog. I was a bit vague on the details at first. Blogging is new to me. I didn't know where to start at first. I REALLY wasn't sure if I could maintain a blog properly because I didn't know if I had to post articles on a certain frequency. (With the multiple chronic illnesses and severe pain, there are times I just can't write articles and there is no way I could "sign up" for something with deadlines and pressure to produce just so much with a particular frequency/timing)!!!

I didn't discuss my "secret dreams" of starting a blog with anyone but talked quite a bit about Tracee's blog to my husband over a period of time. One day he asked me if I'd ever thought of starting my own blog. (I was thinking, "is he reading my mind?"). Well... I had actually given it lots of thought but hadn't voiced it to anyone (even my husband). This is very unlike me! I infamously wear my heart on my sleeve. Those who know me well know that I'm generally not the "secret-keeper" type and that I share my ideas and dreams quite openly in normal circumstances. However, this was something I had some concerns about. I didn't want to "sign up" for something that would end up burning me out or escalating my symptoms. I'm sick enough and couldn't risk undertaking a project that potentially could make me even sicker. A couple of weeks went by. Then Tracee emailed me one day asking the same question my husband had, "have you considered starting your own blog?"

Shortly thereafter Tracee came to the rescue. After pounding her with questions and listening to her GREAT tips, I realized that there are different types of blogs and I COULD make this happen. There ARE blogs that are tied to various media companies where you must produce 6 articles per week, for example. That got ruled out immediately for me due to my illnesses. So Tracee explained to me that I COULD have a blog where I set my own pace and simply post when I'm well enough to do so. That was just an example of the multitude of helpful tips and useful information Tracee Sioux provided me when I was contemplating starting a blog.

She truly inspired me. Yes, her tips and information were inspiring. However, she also inspired me because she is courageous and brave. Her blog tackles tricky and controversial topics at times. She speaks her mind! She does not let fear prevent her voice from being heard. Whether you agree with all of her opinions or not, she is strong and resilient and kind. She is thoughtful and supportive. She CARES!!!

So I just thought it would be appropriate to take a moment to post this "gratitude moment" and thank Tracee Sioux for inspiring me to use my voice to speak out on behalf of endometriosis patients around the world; to speak boldly about women's choices to advocate for themselves when navigating the landmine that is our healthcare system in the U.S.; to "get the word out" to people (men and women, patients and medical professionals... anyone interested in listening or posting their feedback comments here); to generate more awareness about the potentially devastating illness we call endometriosis...

I've seen endometriosis sidetrack or decimate careers, endanger marriages or contribute to divorces happening, cause heartbreaking infertility, cause excruciating and debilitating pain... and so much more! I have met face-to-face (in endometriosis support groups in a couple of cities and their outlying areas in which I've lived over the years) with countless women who are SO sick yet somehow manage to do so much! Unfortunately, sometimes they do "so much" at their own peril. I know ALL about this topic because I went from working 80-hour weeks about 14-15 years ago to now being too sick to work outside the home at all. Pushing the body (and mind) past its limits can have devastating results.

So I'd like to thank Tracee Sioux, for her role in inspiring me to start an endometriosis blog. My intent is to reach out to endometriosis patients and their families, to provide information they may find useful or interesting, to soak up their feedback on the comments to the articles, to hopefully get "guest blogging" rolling eventually (if you have story ideas, let me know), etc.

I am not a medical professional. I am an endometriosis patient whose symptoms began 26 years ago. At my current age of 39, I been through a great deal with endometriosis. From pharmaceuticals and surgery to any valid alternative medicine methods/info I could get my hands on, I have learned and grown so much. My endometriosis support group has been a massive well of info and support!

I hope to incorporate what I've learned from personal experience and from my role as an endometriosis support group co-leader for almost 7 years now into this blog. I want to HELP PEOPLE attain a higher quality of life, be active participants in their healthcare, advocate for their rights when interacting with medical professionals, etc.

I have seen what a relatively small local support group can do to connect endo patients with other endometriosis patients who simply "get it", to help them truly network with fellow patients (a HUGE benefit!!), and to simply have a free exchange of information that positively impacts all who participate!!!

IT IS VERY TOUCHING HOW MUCH SIMPLY CONNECTING WITH FELLOW PATIENTS CAN DO!!!

With this blog, I hope to reach MORE people. My intent is to create on online community of sorts... where readers like you can stop by in moments of need, visit the blog on a regular basis to "stay in the loop" about endo happenings, have the chance to interact with other endometriosis patients (and other chronically ill patients as well)...

I just wanted to take a moment to publicly thank Tracee Sioux.. for her support, encouragement, information, and kindness. Her input was very helpful in me getting out of the "fear zone" about starting a blog... and simply jumping in and doing it! I hope this blog proves helpful, useful, informative, etc. My intent is to provide a comfortable place for interested readers to read posts, write comments/feedback, and perhaps even submit their own ideas for topics of interest, etc.

We're only 20 days in on this blog and I know I have to pace myself. There will be times when I'm too sick to post. When this happens, please check back! I'll post again as soon as I am able.

The more active this blog becomes, the more people we reach. With estimates as high as 80+ million women worldwide who are endometriosis patients AND with the incidence of co-existing conditions for so many endometriosis patients, I believe the need for endometriosis support and information is VAST and I hope to do my small part in providing information/support and a forum for readers' feedback on a variety on endometriosis topics and related topics (such as the topic of chronic illness in general).

I hope to live up to the challenge ahead!

Right now, I just want to thank Tracee again for her support, encouragement, and information. Her brave spirit, her fearlessness, her candid comments, and her honesty are inspirational to me.

Thank you Tracee!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

Alternative Medicine Is Amazing!

As per my disclaimer above, I do not prescribe treatment options. You need to consult with your health care provider(s) for that. I am excited to share some info regarding alternative medicine because many endo patients are not aware of all of the options available for managing endo symptoms.

For the purposes of this blog, I am going to use the phrase “alternative medicine” to refer to treatment options other than the typical “drugs and surgery” that are offered by Traditional Western Medical doctors for treating endometriosis.

In my personal experience and that of many women I know through my endo support group, many alternative medicine options have come to my attention. We will be talking a great deal about alternative medicine options on this blog. This post is just a jump off point for starting a dialogue on options that are available other than standard hormonal treatments and surgeries.

Since surgery can cause adhesions and scar tissue and since these can cause more pain, the benefits and risks of surgeries should be weighed carefully by talking with your doctor. Many women have numerous laparoscopies to remove endo. Also, medications can have side effects.

If alternative therapies and Traditional Western Medicine can be used together as integrative medicine, patients can get the best of both worlds: endo patients can choose the options that are best for them based on their age, fertility desires, number and severity of symptoms (including pain), etc.

Here are just a few alternative medicine options I am aware of through either personal experience or what my support group members have shared with me:

Acupuncture – I have been getting regular acupuncture for over 7 years now. I love it! For many years, I had heard women rave about acupuncture and I was afraid to do it. I thought it would hurt. I was in enough pain already and didn’t want to add to it by getting stuck with needles! However, I now wish I have tried it sooner!!!! My acupuncturist is awesome. He uses Japanese style needles. They are so thin and flexible… nothing like hypodermic needles! He describes them as “about the width of a cat’s whisker”. They are so skinny it’s unbelievable. They do NOT hurt! The cool thing about acupuncture for me is that it helps me in a holistic way…. It helps my whole body. He doesn’t just treat my endo symptoms. He treats all symptoms that acupuncture can appropriately address. It helps me enormously! My acupuncturist is a licensed acupuncturist. Here are a couple of websites you may find helpful:

http://www.acupuncturetoday.com/
http://www.acupuncturefinder.com/

Chi Nei Tsang – A couple of my fellow endo support group members have tried this modality and found it to be very helpful! I’m including a website with info about Chi Nei Tsang: http://www.chineitsang.com/. According to this website, “Chi Nei Tsang is a holistic approach to the healing touch modality of old Taoist Chinese origin. It integrates the physical, mental, emotional and spiritual aspects of our being.” If you haven’t tried this modality, it’s something you may want to investigate!

Diet and Nutrition – Many endo patients find that dietary changes help them feel better. Some endo patients feel better when they follow a wheat free and/or dairy free diet. There are books about endo and nutrition out there. One I’ve heard good things about (but haven’t read) is Endometriosis: A Key to Healing Through Nutrition by Dian Shepperson Mills and Michael Vernon.

Some endo patients have found diets for treating candidiasis helpful. See the book The Yeast Connection: A Medical Breakthrough by Dr. William Crook for more information.

Homeopathy – This has helped me so much! I am very blessed to have a friend who is very knowledgeable about homeopathy and who has helped me determine which homeopathic remedies are appropriate for my needs. If you are interested in checking out homeopathy, I would suggest finding a licensed naturopathic doctor to assist you in selecting the homeopathic remedies that are right for you. Going to the store and buying homeopathics and simply going by what’s on the label isn’t a great option because homeopathy is complicated and those labels simply aren’t enough to guide you if you are not trained in homeopathy. Homeopathic remedies are easy to take (the pellets dissolve under you tongue), they can be fast acting (depending on what symptoms you are taking it for), and they really work!!!

Massage Therapy – Many people think of massage therapy as simply a luxury or form of pampering. However, massage therapy certainly has medical benefits! If massage therapy interests you, try finding a licensed massage therapist by word of mouth. Some massage therapists are take-your-breath-away relaxing and others are just so-so. Some have special training in massage therapy that is more geared to medical benefits rather than just relaxation. Ask around and you may find that someone you know has a massage therapist they swear by!

Physical Therapy for Pelvic Pain – I never knew there was such a thing as this until a support group member told me about it. Then I tried it myself and saw what she was talking about. Then we told other support group members and several of them tried it too. I haven’t heard any negative feedback from the women who have tried this therapy. If you are experiencing pelvic pain, you may want to see if there is a physical therapist in your area that does this particular, specialized form of physical therapy. For information about this therapy, I would try searching on these two websites: http://www.pelvicpain.org/index.asp or http://www.nva.org/. This therapy is typically covered under insurance and often requires a doctor’s referral. The only reason I’m calling it “alternative” is that most endo patients aren’t aware this therapy exists and most doctors don’t mention it to their patients. Some geographical areas don’t have these specially trained practitioners. However, there could be one in your backyard and you won’t know it if you don’t check. This is a modality that can really help women with pelvic pain. Ask your doctor if it’s an option available near you and don’t be afraid to research on your own to see if it’s available in your area. It may be available and your doctor doesn’t know it yet! This is a relatively new field within physical therapy from what I understand.

HAVE A GREAT DAY!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.