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Showing posts with label pain management. Show all posts
Showing posts with label pain management. Show all posts

3/06/2009

'Jeanne's Endo Blog': American Pain Foundation Announces The U.S. House of Representatives Has Adopted The National Pain Care Policy Act Of 2009!

Baltimore, Maryland (March 5, 2000)--The American Pain Foundation (APF) applauds the United States House of Representative’s Energy and Commerce Committee for adopting, yesterday, the National Pain Care Policy Act of 2009 (H.R. 756).



The legislation will now move to the full House for consideration and then to the United States Senate.

Full Bill Summary

FOR IMMEDIATE RELEASE

Per American Pain Foundation:

"Our voices are being heard! On March 4th, the U.S. House of Representative’s Energy and Commerce Committee passed the National Pain Care Policy Act of 2009 (H.R. 756) with broad bipartisan support. The legislation will now move to the full House for consideration and then travel to the U.S. Senate!"

Take Action Now!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

10/11/2008

Endometriosis Blog: The American Pain Foundation's Webcast on October 21, 2008

I just received an email from:

The American Pain Foundation

They are having a one hour webcast on October 21st (see below). Here are the details from their email, for those who are interested...

Webcast for Patients on Safe Use of Opioids on October 21st...

Webcast Announcement
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When Good Medicines Become Bad Drugs

There are many ways to treat pain - opioid and non-opioid medications, psychosocial interventions, physical rehabilitation, complementary & alternative medicine (CAM), injection and infusion therapies, implantable devices and surgical interventions. Because of myths and misconceptions about opioids, discussion of medications often overshadows the importance of all available options for treating pain. However, medications play an important role in pain management. Opioid analgesics, when properly prescribed and taken as directed, can be an effective pain treatment option as part of a multi-modal pain treatment plan. Those affected by pain, providers, patients and family alike, need to be well-informed to be sure that myths and misunderstandings do not get in the way of effective pain control. We also must recognize that keeping pain medications out of unsafe hands is everyone’s responsibility.

Please join a special webcast, When Good Medicines Become Bad Drugs, moderated by General Barry R. McCaffrey, former director of the Office of National Drug Control Policy. This free webcast, sponsored by Cephalon, Inc., will focus on helping patients, caregivers and the public understand that they too have a responsibility in ensuring that prescription opioids are used appropriately. By providing practical tips for safeguarding medications in the home, the program aims to engage patients and caregivers to take an active role in preventing abuse and diversion of prescription opioid pain medications.

This one-hour webcast will take place on October 21, 2008, starting at 3:00 pm EDT. Please register at When Good Medicines Become Bad Drugs.

See their website The American Pain Foundation for more information.

Related link on pain management:

Thursday, June 5, 2008 Book Review - An Awesome Book on the Topic of Chronic Pain!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

9/26/2008

Endo Blog: Pain Care Policy Act Passed UNANIMOUSLY In House Of Representatives! Let's Make Our Voices Heard To Get Congress To Follow Suit!

Sometimes chronic illness and pain are so totally overwhelming that they make us feel downright powerless and drained (emotionally, physically, and financially as well).

There are times we wish we could stop feeling so helpless and take some sort of positive action to help ourselves and the millions of others suffering chronic pain.

Here is a great opportunity to do just that!

News flash!

Thanks to Sherril Johnson of The Invisible Chronic Illness Experience blog, I just became aware of exciting legislation -- The National Pain Care Policy Act (HR 2994) -- that has passed in the House of Representatives UNANIMOUSLY!

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This national legislation is so important. What can YOU do to ensure that Congress passes this bill as well?? Good question! I'm glad you asked! :)

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Click on the link to Sherril's blog The Invisible Chronic Illness Experience. From her 9/25 post, click on "Online Advocacy Center". Then click on the "national legislation" link (middle/bottom of the screen). Now click on "take action NOW". From here, click "take action". Follow the simple, step-by-step instructions provided on this next screen to send an email to the proper representative for you and your region. (The form will figure all that out for you once you input your basic information). After reviewing the form letter provided (yes, it's all written for you to save you time!) and after inserting your contact information, just click "next step". A screen will appear informing you of who the email is being sent to (your representative in Congress). If you're ready to send your email, just click "send your message". That's it! You're done!

It took me approximately 3-4 minutes -- but that was with me flipping screens back & forth while writing these directions. So I'm guessing it will likely take you about 2-3 minutes in total. By taking just those couple of minutes to have your voice heard by Congress, you are speaking out on an issue that affects millions of people. I would imagine most, if not all, who are reading this right now are affected either directly or indirectly by pain and the often inadequate or improper treatment/management of it for so many people.

Please visit Sherril's blog The Invisible Chronic Illness Experience for much more information on this landmark legislation that can help chronic pain patients like you and me!

If you read the detailed and informative post on Sherril's site, you'll see options to read the full transcript or the summary.

If you read the summary of the bill passed by the House of Representatives, one particular category of interest to me was the one in "Section 2" that mentioned it authorizes an Institute of Medicine Conference on Pain Care to, in part:

Highlight disparities in pain care specific to populations that are disproportionately under-treated for pain.


Awhile back, I became familiar with an organization that works to close the gender gap in this area. Women's pain is undertreated when compared to men's pain. For more information and plenty of details on this topic sure to interest our many female readers, their loved ones... and also our male readers who have female loved ones of their own that may be within this undertreated group, please visit For Grace! Their motto is "Empowering Women in Pain". Their informative website has some very interesting facts and is definitely worth looking at.

Sometimes taking a moment or two to help ourselves and others can make us feel productive, boost our self-esteem, and help improve a situation that needs attention. This is an opportunity to do all of the above!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

6/26/2008

National Suicide Prevention Hotline/Lifeline Information

As you have seen from the previous post, endometriosis pain can reach critical and dangerous levels. I have heard over the years of women who have committed suicide (women who had no other illnesses besides endometriosis).

Here is information for ANYONE who EVER feels ANY suicidal ideations. The info is from a website for the National Suicide Prevention Lifeline at:


http://www.suicidepreventionlifeline.org/.

"The National Suicide Prevention Lifeline is a 24-hour, toll-free suicide prevention service available to anyone in suicidal crisis. If you need help, please dial 1-800-273-TALK (8255). You will be routed to the closest possible crisis center in your area. With more than 130 crisis centers across the country, our mission is to provide immediate assistance to anyone seeking mental health services. Call for yourself, or someone you care about. Your call is free and confidential."

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

Endometriosis Patients Get Their Fair Share of Stress!

Endometriosis Patients Get Their Fair Share of Stress!

I am leaving soon for a fun-filled day of adventure. Yes... it is medical-related. I'm afraid I do not have time to elaborate much since I can't be late!!!

I will say that I'm thrilled to have seen we now have readers from several other places outside of the U.S. I have seen New South Wales, Glasgow, Mexico, Australia and others on my live traffic map!!!! This warms my heart because one of my goals is to reach out to people about endometriosis and chronic illness... and not just people in the United States!!!

So... welcome to ALL of our blog readers! This is Day 26 of my endo blog and I am still very excited to connect with others with similar interests.

I wish anyone reading this peace, well-being, and minimal or no pain if possible. Please keep checking back. I promise to post some more interesting stuff than this. I am in a crisis mode this week trying to stay out of the hospital. I promise you there are good articles to come. So please keep checking back regularly. In the meantime, please read through my archives so far. I only started blogging June 1, 2008 but there is lots in the archives already.

Peace!

This article was ORIGINALLY posted by Jeanne this morning via "Jeanne's Endo Blog" at www.endendoat.blogspot.com. It has since been modified and re-posted.

Due to technical limitations of the blogging software (or my lack of knowledge of a way to do it), I was unable to erase a comment I made in response to Yaya’s comment (her feedback is in comment #1 from 9:16 pm below). After replying to Yaya, I reconsidered my wording and thought it best to delete my response to her comment.

I didn’t see a way to delete my comment back to Yaya without deleting the original post too. I have reposted the original post AND Yaya’s comment (exactly as she worded it) is in comment # 1 below).

Therefore, the above post is identical to the original with the exception of this portion about time of day.


This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

6/05/2008

Book Review - An Awesome Book on the Topic of Chronic Pain!

The Truth About Chronic Pain: Patients and Professionals on How to Face It Understand It, Overcome It by Arthur Rosenfeld.



I found this book in my local library. I think it is fantastic! It was interesting from start to finish.


The first section of the book, "Patients in Pain", consists of several chapters. Each chapter contains the author's interview of a chronic pain patient.


Part two contains the author's interviews with caregivers (health care professionals).

The third section is called "Thinkers on Pain".


Finally, the author concludes with an epilogue, "Toward Compassionate Pain Management", which covers the current state of pain management in our society and his view of how it needs to change for the better.


I think ANYONE who has chronic pain will find this book absolutely fascinating. Many of those interviewed in this book have strong opinions on the topic of pain. I agreed wholeheartedly with some, but not all, of their opinions. Whether I agreed with each opinion or not, I found all of the viewpoints represented here to be quite interesting.

I highly recommend this book to anyone who experiences chronic pain (or who has a loved one who does). While I realize that not all endo patients experience physical pain as a symptom, this book may still hold interest for those without that symptom. (Emotional pain is discussed in the book as well as physical pain).

This book is thought-provoking and eye-opening.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

6/02/2008

Endometriosis and Endo-related Links You May Want to Check Out

Hi! I thought I'd post some links that may be of interest to endo patients. Some of them are endo websites. Others are sites for illnesses that often co-exist in endo patients. Still others are websites you may find uplifting/supportive.

There is no cure for endometriosis. There's a myth that hysterectomy is a cure for endo. Only you and your doctor can make treatment decisions as a team but I've included a couple of websites on the topic of hysterectomy. I thought this might be helpful since there is much confusion about this topic. One site is devoted to alternatives to hysterectomy. The other site says it provides "woman to woman hysterectomy support".

http://www.endometriosis.org/
http://www.endocenter.org/
http://www.endometriosisassn.org/
http://www.butyoudontlooksick.com/the_spoon_theory/
http://www.resolve.org/site/PageServer
http://www.pelvicpain.org/
http://www.noharm.org/us
http://www.womenandenvironment.org/
http://www.forgrace.org/women/in/pain_home/
http://www.ichelp.org/
http://www.fmnetnews.com/
http://www.hersfoundation.org/
http://www.hystersisters.com/

I hope you find these helpful!

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