I was honored to see in today's Invisible Illness Week Blog (an email feed) that this blog is listed on Lisa Copen's "Blog Roll of Thanks" for blogging about National Invisible Chronic Illness Awareness Week and explaining to the chronic illness community how this blog relates to Chronic Illness Week.
Since I just began blogging on June 1, 2008... this was the first year I had heard of or participated in National Invisible Chronic Illness Awareness Week.
I cannot stress enough the amount of information available from this organization. I have listened in on some of the live seminars (and participated in the conversations on a couple of them on live calls) and I am really impressed with the quality of information and just how much the people facilitating these chronic illness seminars "get it".
It's amazing to me how much energy and information is being exchanged between so many people in just one week's time. There are hundreds of bloggers involved in this awareness week.
It's an opportunity for chronically ill patients to learn, get support, and network with other patients. There are a variety of websites that are offshoots of the main site.
Here is the main site that I've listed on other posts:
http://www.invisibleillness.com
In addition to patients getting support and information... it's a chance for chronically ill bloggers to connect with each other, compare stories, share information, and improve the quality of their own blogs by what they learn from other chronically ill bloggers.
There is a vast amount of information available during this awareness week on a wide variety of chronic illnesses.
I really like the way the seminars cover not just info for patients but info for their loved ones and support people too.
Chronic illness affects marriages, families and relationships too.
While patients clearly need support, so do their loved ones!
I urge you to check out the seminars available online at the following site:
http://www.invisibleillnessconference.com
Some of the seminars have already taken place and some are yet to come today and tomorrow. However, all 20 seminars are going to be available archived online. So if you missed one, you'll still be able to hear it.
As I mentioned yesterday, many readers here will especially appreciate this seminar:
Jenni Saake's seminar on: "Medications, Illness, Fertility and the Desire for Motherhood"
I believe there are numerous seminars that may interest you. So take a peek at what's available and see if something catches your eye. I have only heard a couple of them so far but the ones I heard were great.
It's great to get such wonderful support in the comfort of our own homes. Since many chronically ill patients find travel difficult (due to pain level, financial obstacles, chemical sensitivities, and any other number of reasons), it's really nice to participate in an awareness week with seminars comparable to what one would find at an in-person conference...
The difference is that there's no airfare, gas money, conference fee, or even leaving home to participate!!
I highly recommend checking out what the main website and seminar website have to offer.
Here again are those websites:
http://www.invisibleillness.com
main site
http://www.invisibleillnessconference.com/
seminars/how to access blogtalkradio archives
I heard quite a bit of buzz about this awareness week on chronic illness blogs in the last few weeks. After participating in this awareness week myself, I now understand what the buzz was about.
See related links:
Sunday, September 7, 2008 Endometriosis Blog: Tomorrow is DAY ONE of National Invisible Chronic Illness Awareness Week 2008!!
Monday, September 8, 2008 Endometriosis Blog: ***TODAY*** Kicks Off National Invisible Chronic Illness Awareness Week 2008!!
Tuesday, September 9, 2008 Endometriosis Blog: National Invisible Chronic Illness Awareness Week - Shameless Plugs For Their Merchandise
Wednesday, September 10, 2008 Endometriosis Blog: National Invisible Chronic Illness Awareness Week - "Medications, Illness, Fertility and the Desire for Motherhood"
There is a great deal of information in one place, for free, and available online. You can't beat that!
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
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