Sometimes people are just plain nice.
Recently, I met a woman on twitter named Tammey. We exchanged several messages and she was very friendly. So, I asked her the same question I ask everyone these days, "will you sign my petition?"
She kindly agreed to do so, despite the fact that she does not have endo. Then she volunteered to share the petition with her LupusAutoimmuneSisters support group and ask them to sign it too!
Twitter users, please send her a thank you tweet: Tammey
Sometimes people are just plain nice.
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Showing posts with label Endometriosis Awareness Month. Show all posts
Showing posts with label Endometriosis Awareness Month. Show all posts
3/12/2009
"Jeanne's Endo Blog" Thanks Laurie From "A Chronic Dose" For Helping Us Increase Endometriosis Awareness!
Thank you to Laurie Edwards for helping us spread the word about endometriosis here:
Happenings from Around the Medical Blogosphere
With so many of us working together to create awareness, we really are making the most of Endometriosis Awareness Month!
MARCH BLOGGING MADNESS FOR ENDOMETRIOSIS AWARENESS
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Happenings from Around the Medical Blogosphere
With so many of us working together to create awareness, we really are making the most of Endometriosis Awareness Month!
MARCH BLOGGING MADNESS FOR ENDOMETRIOSIS AWARENESS
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
'Jeanne's Endo Blog": Thank You To Sonja Of The "Don't Scare Easy" Blog!
Let's hear it for Sonja of Don't Scare Easy! She posted the endometriosis petition link on her blog.
Thank you, Sonja!!
Will you be next?
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Thank you, Sonja!!
Will you be next?
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
3/10/2009
'Jeanne's Endo Blog': Sandy From Fighting Fatigue Has The Endometriosis Awareness Month Spirit!!
Here is a huge THANK YOU to Sandy at Fighting Fatigue!!
Check out her post!
Sign Petition to Raise Awareness During National Endometriosis Awareness Month
It would warm my heart if we can get the petition posted like this on other blogs!! Please consider doing so to increase endometriosis awareness!
Now, if you're reading this post and you have not yet read my previous post,
Monday, March 9, 2009 (VIDEO) 'Jeanne's Endo Blog': Vlog #3 Endometriosis Awareness Month (Week One Recap) & Acupuncture Intro Video, please go check it out.
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Check out her post!
Sign Petition to Raise Awareness During National Endometriosis Awareness Month
It would warm my heart if we can get the petition posted like this on other blogs!! Please consider doing so to increase endometriosis awareness!
Now, if you're reading this post and you have not yet read my previous post,
Monday, March 9, 2009 (VIDEO) 'Jeanne's Endo Blog': Vlog #3 Endometriosis Awareness Month (Week One Recap) & Acupuncture Intro Video, please go check it out.
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
2/28/2009
'Jeanne's Endo Blog': Ways To Help Spread Awareness About Our Petition And Media Campaign For Endometriosis Awareness
It is March 1, 2009.
That means that it's Endometriosis Awareness Month!!!
If you have not watched my new VIDEOS, please check them out. They are located in the right sidebar. You can't miss them!
WE ARE BUSY!!! Many endometriosis bloggers are banding together to promote this awareness month!
Are you looking for a quick and easy way to support our ongoing efforts to create or increase endometriosis awareness and understanding?
Are you too tired to spend very much time doing so?
I have a couple of ideas that you might like to do to help increase awareness of endometriosis:
1) Having the petition listed here on my blog is fine but we'd reach a lot more people if the link was posted elsewhere too. If you have a blog, would you consider linking to the endometriosis awareness petition? Anyone who supports the endometriosis cause is welcome to sign it. In addition to hundreds of endometriosis patients, it already has patients' grandparents, spouses, parents, aunts, siblings, etc... in addition to patients themselves. The more names we get, the better our odds for media coverage!
Here (below) is the link that will take you to the petition. If it looks like something you'd like to post a link to on your blog, just copy the URL from that screen to use as the link. That way people will be able to access the petition right from your site!
Create Endometriosis Awareness & Understanding
2) If you're on twitter, Facebook, or any social networking site... please post information about Endometriosis Awareness Month whenever you get a chance.
On twitter, please mark any endometriosis-related tweets with this symbol at the end of the message:
#endo
This is catching on and sorts all of our endo tweets nicely!!
If you have not watched my new VIDEOS, please check them out. They are located in the right sidebar. You can't miss them!
WE ARE BUSY!!! Many endometriosis bloggers are banding together to promote this awareness month!
Are you looking for a quick and easy way to support our ongoing efforts to create or increase endometriosis awareness and understanding?
Are you too tired to spend very much time doing so?
I have a couple of ideas that you might like to do to help increase awareness of endometriosis:
1) Having the petition listed here on my blog is fine but we'd reach a lot more people if the link was posted elsewhere too. If you have a blog, would you consider linking to the endometriosis awareness petition? Anyone who supports the endometriosis cause is welcome to sign it. In addition to hundreds of endometriosis patients, it already has patients' grandparents, spouses, parents, aunts, siblings, etc... in addition to patients themselves. The more names we get, the better our odds for media coverage!
Here (below) is the link that will take you to the petition. If it looks like something you'd like to post a link to on your blog, just copy the URL from that screen to use as the link. That way people will be able to access the petition right from your site!
Create Endometriosis Awareness & Understanding
2) If you're on twitter, Facebook, or any social networking site... please post information about Endometriosis Awareness Month whenever you get a chance.
On twitter, please mark any endometriosis-related tweets with this symbol at the end of the message:
#endo
This is catching on and sorts all of our endo tweets nicely!!
Also...
If you're interested in posting one of my banners on your site, please feel free.
Help yourself! There is a vertical banner and a horizontal one...
If you're interested in posting one of my banners on your site, please feel free.
Help yourself! There is a vertical banner and a horizontal one...
3) If you think your readers might benefit from any of the info presented on this site, please consider grabbing one of the following banner graphics and installing it on your site with a linkback to my blog. I would greatly appreciate it!
My friend Alicia (aka Yaya) honored me by posting my banners on her site and I very much appreciate it!
4) For anyone who hasn't written to Mariela Azcuy of Meredith Publishing Corp., it's not too late to do so. See previous posts for details.
This Endometriosis Awareness Month is kicking off strong with multiple endometriosis bloggers teaming up to create endometriosis awareness on all sorts of projects! It is very exciting!
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
2/27/2009
"Jeanne's Endo Blog" Thanks Melissa Ralston Of "Endometriosis: Facing The Battle Head-On"...
Thank you to Melissa Ralston for the shout-out about my endometriosis awareness petition and our efforts to attract media attention to the importance of getting endometriosis FACTS out to the public.
Raising Awareness: Media Campaign for Endometriosis Awareness Month (March)
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
Here's her post:
Raising Awareness: Media Campaign for Endometriosis Awareness Month (March)
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
2/20/2009
"Jeanne's Endo Blog": *ENDOMETRIOSIS AWARENESS* Letter Campaign Example!!
This post is a follow-up to:
Monday, February 16, 2009 Jeanne's Endo Blog: How MORE Magazine’s Chronic Illness Article Knocked My Socks Off & How Happy I'd Be If We Can Work Together To Get Endo Covered!
If you haven't yet read the above post, I encourage you to do so.
Following that post, Endochick and I discussed how we can capitalize on the momentum we have going to get people writing letters for endometriosis awareness. I asked Endochick if I could reprint her amazing letter to Mariela Azcuy (see Ms. Azcuy's contact info later in this post):
Endochick graciously agreed to let me print her letter to Ms. Azcuy. Whether this letter was written to Ms. Azcuy or to anyone with media contacts, we believe that posting sample letters such as this will inspire others to write their own letters regarding their personal journeys with endo!
March is Endometriosis Awareness Month. We're ramping up now to, hopefully, make a big splash next month regarding endometriosis awareness!
I urge you to read Endochick's post from today:
*ENDOMETRIOSIS AWARENESS* Letter Campaign Example!!
Her post about this topic on her blog gives much helpful detail!! So please go check it out!!
Now, it is my pleasure to present Endochick's letter. Again, I urge you check out Endochick's entire post about the topic of letter-writing to create endo awareness... especially with Endometriosis Awareness Month around the corner in March!!
As promised, here is the example of Endochick's letter to Mariela Azcuy. Please remember that her work on her blog is copyrighted and that the following letter is therefore under copyright protection (as is my writing on this blog).
Endochick says,
"You may use this example as a reference, and I hope it inspires you".
Here's Endochick's "Sample Letter":
---
Mariela Azcuy
Senior Associate Director of PR
Ladies’ Home Journal, More and Siempre Mujer Magazines
Meredith Corp.
125 Park Ave, 17th Floor
NYC 10017
Dear Ms. Azcuy:
I am writing on behalf of the 89 million women and young ladies who suffer daily from endometriosis. In North America it’s estimated that this number is 5.5 million strong and growing every year. Many of these women go undiagnosed for years and then once diagnosed are either under or improperly treated. And even worse, Ms. Azcuy, endometriosis sufferers are marked with a stigmata that haunts them, often before they are even officially diagnosed with the condition. Society views many of us as drug seekers, doctors withhold needed medication, and our co-workers and bosses see us as attention seekers.
But let me first commend your corporation for its in-depth coverage on chronic illnesses. While these illnesses do warrant a need for more press time, one chronic and often time debilitating illness is not getting it’s due coverage in the media – endometriosis. This past fall, television viewers received a mediocre education on endometriosis via the coverage given to Dancing with the Stars’ Julianne Hough and Lacey Schwimmer’s diagnoses’.
The coverage by the media glossed over one vital fact in how endometriosis is diagnosed: the only definitive way to diagnose endometriosis is to perform a laparoscopy. According to the Endometriosis Association, “diagnosis is considered uncertain until proven by laparoscopy, a minor surgical procedure done under anesthesia. A laparoscopy usually shows the location, size, and extent of the growths. This helps the doctor and patient makes better treatment choices.” The Endometriosis Research Center agrees: “Endometriosis can ONLY be diagnosed via surgery; diagnostic tests like MRIs and ultrasounds are not definitive.”
The scary fact is that there are doctors diagnosing patients not with “probable endometriosis” but with “definite endometriosis” based on nothing more than their symptoms. The diagnosis from one to the other allows the doctor to prescribe a whole host of potent medications; medications that should be reserved for women with confirmed endometriosis that doesn’t respond to lesser hormonal preparations. Yet, I have personally seen this happen with two women who have contacted me via my blog. They hadn’t even had a laparoscopy, so their doctors can’t even be sure they in fact do have endometriosis! It was believed that my own sister had endometriosis until a laparoscopy found her pelvis free of the disease. A pap smear, on the other hand, found the cause of her excessive bleeding: cervical cancer.
There are too many conditions that can mimic endometriosis - diverticulitis, infection, ovarian cysts, pelvic inflammatory disease, irritable bowel disease, STD’s, vaginitis, and even ectopic pregnancy. Would it be ethical to give anti-cancer drugs without first doing an MRI or a CT scan to look for a tumor? Yet, there are doctors subjecting women to the effects of menopause, severe migraines, moments of rage, and a decreased sex drive when an outpatient, surgical procedure can determine whether there is even a need for the medication!
As I hope you can see there is an urgent need for appropriate, in-depth media coverage on endometriosis. My fellow endometriosis and chronic health bloggers congratulate your corporation on the wonderful coverage you’ve given to the chronic illness community, now we implore that you do the same for the endometriosis community. Please help me and my fellow endometriosis bloggers to help the 89 million women and young ladies feel that the pain they feel is not in their minds, and that they are not alone. Help us to give endometriosis the voice it deserves in the media.
Sincerely,
Endochick (Put your real name)
Blog: Endometriosis: The Silent Life Sentence
------
My hope and intention in the coming weeks is to post more sample letters to inspire YOU to write your stories to get the facts about endometriosis into the media once and for all.
Please keep those letters rolling into Ms. Azcuy and I'd really appreciate if you can copy me on them if at all possible!! If you copy me on your letter to the press (Ms. Azcuy or otherwise), please indicate whether you'd be comfortable with me posting your letter as a sample to inspire others to write in to support accurate media coverage of endo!
The response to the vlog/blog post has been fantastic. Please keep those letters and petition signatures rolling in. :)
Thank you!
Monday, February 16, 2009 Jeanne's Endo Blog: How MORE Magazine’s Chronic Illness Article Knocked My Socks Off & How Happy I'd Be If We Can Work Together To Get Endo Covered!
If you haven't yet read the above post, I encourage you to do so.
Following that post, Endochick and I discussed how we can capitalize on the momentum we have going to get people writing letters for endometriosis awareness. I asked Endochick if I could reprint her amazing letter to Mariela Azcuy (see Ms. Azcuy's contact info later in this post):
Endochick graciously agreed to let me print her letter to Ms. Azcuy. Whether this letter was written to Ms. Azcuy or to anyone with media contacts, we believe that posting sample letters such as this will inspire others to write their own letters regarding their personal journeys with endo!
March is Endometriosis Awareness Month. We're ramping up now to, hopefully, make a big splash next month regarding endometriosis awareness!
I urge you to read Endochick's post from today:
*ENDOMETRIOSIS AWARENESS* Letter Campaign Example!!
Her post about this topic on her blog gives much helpful detail!! So please go check it out!!
Now, it is my pleasure to present Endochick's letter. Again, I urge you check out Endochick's entire post about the topic of letter-writing to create endo awareness... especially with Endometriosis Awareness Month around the corner in March!!
As promised, here is the example of Endochick's letter to Mariela Azcuy. Please remember that her work on her blog is copyrighted and that the following letter is therefore under copyright protection (as is my writing on this blog).
Endochick says,
"You may use this example as a reference, and I hope it inspires you".
Endochick
Here's Endochick's "Sample Letter":
---
Mariela Azcuy
Senior Associate Director of PR
Ladies’ Home Journal, More and Siempre Mujer Magazines
Meredith Corp.
125 Park Ave, 17th Floor
NYC 10017
Dear Ms. Azcuy:
I am writing on behalf of the 89 million women and young ladies who suffer daily from endometriosis. In North America it’s estimated that this number is 5.5 million strong and growing every year. Many of these women go undiagnosed for years and then once diagnosed are either under or improperly treated. And even worse, Ms. Azcuy, endometriosis sufferers are marked with a stigmata that haunts them, often before they are even officially diagnosed with the condition. Society views many of us as drug seekers, doctors withhold needed medication, and our co-workers and bosses see us as attention seekers.
But let me first commend your corporation for its in-depth coverage on chronic illnesses. While these illnesses do warrant a need for more press time, one chronic and often time debilitating illness is not getting it’s due coverage in the media – endometriosis. This past fall, television viewers received a mediocre education on endometriosis via the coverage given to Dancing with the Stars’ Julianne Hough and Lacey Schwimmer’s diagnoses’.
The coverage by the media glossed over one vital fact in how endometriosis is diagnosed: the only definitive way to diagnose endometriosis is to perform a laparoscopy. According to the Endometriosis Association, “diagnosis is considered uncertain until proven by laparoscopy, a minor surgical procedure done under anesthesia. A laparoscopy usually shows the location, size, and extent of the growths. This helps the doctor and patient makes better treatment choices.” The Endometriosis Research Center agrees: “Endometriosis can ONLY be diagnosed via surgery; diagnostic tests like MRIs and ultrasounds are not definitive.”
The scary fact is that there are doctors diagnosing patients not with “probable endometriosis” but with “definite endometriosis” based on nothing more than their symptoms. The diagnosis from one to the other allows the doctor to prescribe a whole host of potent medications; medications that should be reserved for women with confirmed endometriosis that doesn’t respond to lesser hormonal preparations. Yet, I have personally seen this happen with two women who have contacted me via my blog. They hadn’t even had a laparoscopy, so their doctors can’t even be sure they in fact do have endometriosis! It was believed that my own sister had endometriosis until a laparoscopy found her pelvis free of the disease. A pap smear, on the other hand, found the cause of her excessive bleeding: cervical cancer.
There are too many conditions that can mimic endometriosis - diverticulitis, infection, ovarian cysts, pelvic inflammatory disease, irritable bowel disease, STD’s, vaginitis, and even ectopic pregnancy. Would it be ethical to give anti-cancer drugs without first doing an MRI or a CT scan to look for a tumor? Yet, there are doctors subjecting women to the effects of menopause, severe migraines, moments of rage, and a decreased sex drive when an outpatient, surgical procedure can determine whether there is even a need for the medication!
As I hope you can see there is an urgent need for appropriate, in-depth media coverage on endometriosis. My fellow endometriosis and chronic health bloggers congratulate your corporation on the wonderful coverage you’ve given to the chronic illness community, now we implore that you do the same for the endometriosis community. Please help me and my fellow endometriosis bloggers to help the 89 million women and young ladies feel that the pain they feel is not in their minds, and that they are not alone. Help us to give endometriosis the voice it deserves in the media.
Sincerely,
Endochick (Put your real name)
Blog: Endometriosis: The Silent Life Sentence
------
My hope and intention in the coming weeks is to post more sample letters to inspire YOU to write your stories to get the facts about endometriosis into the media once and for all.
Please keep those letters rolling into Ms. Azcuy and I'd really appreciate if you can copy me on them if at all possible!! If you copy me on your letter to the press (Ms. Azcuy or otherwise), please indicate whether you'd be comfortable with me posting your letter as a sample to inspire others to write in to support accurate media coverage of endo!
The response to the vlog/blog post has been fantastic. Please keep those letters and petition signatures rolling in. :)
Thank you!
This post is cross-posted with Endochick's post:
*ENDOMETRIOSIS AWARENESS* Letter Campaign Example!!
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
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