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Showing posts with label premature babies. Show all posts
Showing posts with label premature babies. Show all posts

1/11/2009

Guest Blog Post: Kelly Damron's Journey With Infertility - Author Of "Tiny Toes: A Couple's Journey Through Infertility, Prematurity, and Depression"

Meet Kelly Damron.



I am a fan of Kelly's blog Twin Peas Blog And Podcast and I asked her if she would be so kind as to write a guest blog post for my blog. She kindly agreed to guest blog and here is her thorough, in-depth, and compassionate article. I am thrilled to share it here.

Here is some information about Kelly taken from her blog profile:

Kelly Damron survived infertility only to experience the premature birth of her twin daughters. She rebuilt her marriage that had been on the brink of ending in divorce all because of infertility. In her blog she talks about infertility and much more.

Below is Kelly Damron's guest post. I'm honored to have her guest blog here!

Many women who have endometriosis struggle with infertility. For purposes of full-disclosure, I've never had endometriosis. I cannot imagine the pain you feel each month nor can I relate to the stress that disease places on your body. However, I can relate to your desire to have a baby and how infertility can compound the challenges you already face.

Quickly I'll share my story. My husband was diagnosed with male factor infertility (he had poor sperm). We had tried to conceive spontaneously for 12 months before both of us went to the doctor for testing. I underwent every possible test to determine if I had blockages, endometriosis, lesions in my uterus, etc. You name it and I was tested for it. With male factor infertility, as with endometriosis, your options for getting pregnant can be limited. In our case, the best option was in vitro fertilization with intracytoplasmic sperm injection (ICSI) -- which is where they manually inject the sperm into an egg because the sperm isn't able to fertilize the egg on its own. We were lucky and conceived using IVF/ICSI. We thought we were really lucky when we found out it was twins. After all, many women I meet tell me how they want twins or that they wanted twins. However, my twin pregnancy ended early at 30 weeks gestation. My girls were only 2.5 pounds each. They spent 7 weeks in the Neonatal Intensive Care Unit. One of my daughters had a preemie disease and had a life saving surgery when she was only 4 weeks old. Today my girls are healthy and happy. They don't seem to have any long-term consequences of their prematurity. We are lucky and truly blessed for the gift we have been given. Thank goodness for medical advances - they got us pregnant, kept us pregnant and kept our girls alive until they could survive the outside world on their own.

Now onto the real reason for this post. Jeanne asked me to write a post about infertility for her readers. I'm honored that she trusted me with this subject and gracious she asked me to be a guest blogger.

As challenging as it is for people to understand what endometriosis is, it's even more challenging for them to comprehend infertility. Many people consider infertility to be a lifestyle choice. The comments can be cruel: it's natural selection, you weren't meant to have kids, etc. However, infertility is a disease. It is a disease of the reproductive system and can impact both men and women. When you look at the underlying causes of infertility you can pinpoint the disease (except for unexplained infertility which is about 15 percent of all infertility cases). Medical reasons for infertility include, but are not limited to, endometriosis, Polycystic Ovary Syndrome (PCOS), male Varicocele, etc. Male factor accounts for about 30-35 percent of infertility and 55 percent is female or combo male/female factor. No matter the reason, infertility is stressful, sad, private, and lonely.

When a woman is diagnosed with cancer or heart disease she talks freely about her diagnosis and receives compassion from friends, family, co-workers, etc. People understand cancer and heart disease. These are also deadly diseases that if not treated can kill you. This is not the case with infertility. If you are diagnosed with infertility it is very unlikely that you face death. However, you might feel dead inside. I did. I wanted a child more than I wanted to live another day without one. Some of you can probably relate. Some of you might think that I was a little dramatic. Each of us handles our crises differently and this should be okay.

What do you do, though, if you want a baby yet you're faced with female and/or male factor infertility? My advice is to start looking for answers to your questions. You may not even know what your questions are, that is okay too. There are a ton of resources for you. Here is a short list:

InterNational Council on Infertility Information Dissemination, Inc. (INCIID)

RESOLVE: The National Infertility Association

American Fertility Association

Fertility LifeLines

Fertility Today Magazine: "America's Leading Expert in Reproductive Medicine"

About.com: A source for infertility information and discussion forums

My Fertility Plan: Not sure where to start? Contact My Fertility Plan to save money and time before you start your journey

Infertility is complicated by the stigma faced by both men and women. For a man, sperm production can be associated with his manliness. Same logic can be true for women and being pregnant/having a baby. Other issues are the political and/or religious argument against fertility treatments. As you may know the Vatican recently voiced their opposition to assisted reproduction, especially IVF. If you are Catholic this may put you in an awkward place in your family building journey. And I haven't even explored the cost of family building, whether its fertility treatments or adoption, it's expensive and more often than not there's no health insurance coverage...

To end this post I'm offering a few tricks that I learned along the way. Some of these I didn't practice and some I did.

1. Infertility is a couple's disease. It doesn't just impact you, even if you're the one with the medical issue. You are both in this together. My husband and I didn't take this approach initially and our relationship suffered because of it.

2. Communicate often with your partner. This is something my husband and I didn't do well. We made a lot of assumptions about what the other person wanted, and we were often wrong. It created a lot of conflict and almost led to divorce. Be open and honest. It will serve your relationship better in the long run.

3. Tell your friends and family members what you are going through. Often women will tell me this backfires on them. They are often disappointed with the lack of support they receive once they tell all. My logic is that when you let them know you learn who can support you and who cannot. It's always good to find the shoulder you can lean on as it may not be the one you were expecting it to be. I expected my friends who had gone through infertility to be my greatest supporters; instead it ended up being my friends with children. My infertile friends wanted to move on and forget once they got pregnant. They were no help at all, who knew? When those you love are not supportive I think it's because they don't understand the disease or how it makes you feel. Use this as an opportunity to educate them. Point them to websites or blogs they can read. They'll come around eventually and if they don't there is a lesson to be learned here too.

4. Do your own research. Before and after your doctor appointments educate yourself on the terminology, options, etc. My husband and I did this when we got our first set of results and it helped prepare us for discussions with the Reproductive Endocrinologist. It was nice to be able to talk with the doctor and understand the terms he used. It was comforting to know that the information he provided was similar to what we had read.

5. Ask a lot of questions. Whether you seek referrals from others who have been there, done that or ask your doctors/nurses question, make sure every question you have gets answered.

To the readers of Jeanne's blog, I'm offering you one of my two ebooks, free, which are generally only available to subscribers of my blog.

Send Kelly an email at info [at] twinpeas [dot] com and she’ll send you a copy.

Choose from:

A. 30 Questions to Ask Your Doctor about Infertility and Treatments

B. Managing Your Relationships and Your Sanity During Infertility


Best of luck to you on your journey to build your family.

Kelly Damron
Author of "Tiny Toes: A Couple's Journey Through Infertility, Prematurity, and Depression"
Blog: www.Twinpeas.com/wordpress.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

11/18/2008

Endometriosis Blog: November Is National Prematurity Awareness Month

Today I was inspired to write a post after reading an excellent article posted by Kelly Damron!

Her blog is called Twin Peas Blog and Podcast: Infertility and Premature Birth resources and experiences.

I was just reading Kelly Damron's blog post regarding the fact that November is National Prematurity Awareness Month.

I didn't realize until reading Kelly's post that November 12th was National Prematurity Awareness Day because I hadn't heard about it until after the fact!
However, again, the entire month of November is National Prematurity Awareness Month

When certain conditions get more attention and research dollars than others, it's hurtful and damaging to those who have the "under researched" issues that are less talked about in public circles.

Now don't get me wrong. I'm not advocating graphic descriptions of laparoscopic surgeries at the dinner table. What I am saying is that if a bladder cancer patient can discuss his/her condition with family and friends... then patients with endo or patients with infertility/miscarriage history and/or adoption proceedings should be able to discuss their situations just as freely... if they wish to do so.

As Kelly alluded to in her blog post, relatively little attention is given to events honoring "infertility, loss, and premature babies" and that there is much more publicity given for other conditions. This simply should not be the case.

Here are my thoughts after talking with many women who have or have had infertility, miscarriages, and had premature babies...

1) Our society as a whole doesn't know how to deal with these issues. People may gave good intentions to be "polite" and to not be "intrusive". They may avoid discussing these topics for fear of upsetting couples dealing with these issues. However, this can lead to isolation of the couple and make the healing process harder for them than it would be if they felt they could talk openly about it. While patients who go through these emotionally draining and exhausting issues all have their own ways of dealing with their situations, most that I have met WANT to talk about it.

PLEASE NOTE: For open and candid discussion about infertility, miscarriages, and starting the adoption process, please see my friend Alicia's information-packed blog Yayastuff.

Alicia's candor about the wide range of emotions she has been through on her journey is a testiment to her strength and determination. Her courage is inspiring her many readers on her blog!

2) Illnesses or conditions that affect or are related to reproductive organs tend to be less openly discussed than others. For example, endometriosis is rarely brought up in casual conversation but if a person were to talk about asthma or diabetes, the conditions would/could just be discussed openly. There are people who are uncomfortable discussing issues that make them feel awkward. It has taken years for me to do a 180 degree turn from being quiet, shy, and downright mousy about my endometriosis (and other) symptoms... to being open, candid and comfortable talking about my illnesses as if they were any other. (It took me a few years to fully comprehend that I have nothing to be embarrassed about or feel awkward about. If others don't feel self-conscious discussing their conditions, why should I feel muzzled about my health issues)???

I'm not sure if my theories answer Kelly's question or not but I have seen in working with many women in endometriosis support groups that there is often a "stigma" or a level of embarrassment that women sometimes feel when discussing "taboo subjects" such as periods, cramps, hormones, etc. This is truly unfortunate.

How can we band together to make headway on these issues if people aren't talking much about it? If the people dealing with these conditions don't feel at liberty to discuss them with anyone but fellow patients, how will anything ever change for the better as far as awareness?
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Please see previous articles I have written about the other (related) awareness days and/or weeks that I heard about in time. Thanks to Kelly, I heard about awareness month in time to post about it for November!

Related articles:

Wednesday, October 15, 2008 Stillbirth Awareness and Research Act

Sunday, October 19, 2008 Endometriosis Blog -- RESOLVE: National Infertility Awareness Week Is October 19-25, 2008 -- Reminder

Tuesday, October 21, 2008 Endometriosis Blog: National Infertility Awareness Week -- A Personal Story


This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

HAVE YOU SIGNED YET?? Please Sign Endometriosis Awareness Petition Below! Awareness YEAR-ROUND!