Endometriosis Blog: VIDEOS Of Husband's Grief Over The Loss Of His Wife Who Had Fibromyalgia. These VIDEOS Could Help Many People!!!

I just came across this moving video. I will forewarn you before you watch it that it is very emotional. I am crying as I write this post. The video is a man talking about the loss of his wife. His wife had fibromyalgia. This man is trying to create awareness about fibromyalgia, chronic fatigue syndrome, and chronic pain.

This video is very powerful. Again, I will caution you that this video may stir up painful emotions for viewers. However, I feel compelled to feature it here because I believe this widower really captures the tragedy that an illness such as fibromyalgia can cause.

In the video, you will hear this man make reference to a New York Times article that questioned whether there is such a thing as fibromyalgia at all. This article was very upsetting to me and to many fibromyalgia patients (and the doctors who treat them and believe fibromyalgia is VERY REAL)!!

I believe this man's compelling video is a chilling but loving account of how fibromyalgia affected his wife. I see it as a tribute to his wife... by a man in severe emotional pain who is working hard to create awareness about the scope of illnesses like fibromyalgia and chronic fatigue syndrome!

I urge you to watch this video and listen to this man's story of what his wife went through. His wife's story is chilling, sad, and tragic... but he is working to share her story to help others.

After the video, I will include a link to the New York Times article he referenced that upset so many people. Then I will also post the letter I wrote to the New York Times when that heinous article came to my attention.

This man asks that viewers of this video write to Oprah in an attempt to get this story aired on her show.

Please take 9 minutes and 54 seconds out of your life to watch this compelling video. It may bring you to tears as it did me. However, I believe it is worth watching. I admire this husband's tenacity in working to create awareness about the profound impact illnesses such as fibromyalgia can have on patients. This video gave me chills.

I was unable to get the embedded code for this video to work but if you simply click on the hyperlink below, you will be routed to this powerful video:

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

VIDEO --- "Fibromyalgia - Lisa's Story".

Here is the compelling video from Lisa's husband... "Fibromyalgia - Lisa's Story"

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
Here is a link to the terribly inaccurate New York Times article questioning the existence of fibromyalgia:

New York Times article on fibromyalgia

Here is the letter to the editor of the New York Times that I sent in February 2008:

From: Jeanne
Sent: Friday, February 29, 2008 11:10 PM
To: 'public@nytimes.com'
Cc: 'nytnews@nytimes.com'; 'managing-editor@nytimes.com'
Subject: OUTRAGE over "Drug Approved, Is Disease Real?"

ATTN Mr. Clark Hoyt, Public Editor

Cc: News Department; Managing Editor

I just learned of a January 14, 2008 (front page) New York Times article called “Drug Approved, Is Disease Real? I am astonished to have read this troubling, hurtful, inaccurate article. I was shocked that the New York Times article questions whether fibromyalgia is real!

The article’s portrayal of fibromyalgia as a fictional illness is appalling!

Can you imagine if the NYT wrote an article about cancer being imaginary? I have fibromyalgia and I have had cancer; trust me that fibromyalgia is as real as cancer. How many letters and calls would you be flooded with if cancer were painted as a fictional illness? Can you imagine the uproar?

This article drags millions of fibro patients through the mud with its inaccuracies. Fibro patients have enough trouble without people believing them to be fakers. Articles like this get read by many people. They read the “big bad pharmaceutical company” slant of this article and are left to believe that any fibro patient they meet is faking, lying, imagining, etc. This is very damaging to people already suffering so much. Fibro patients need MORE support from family, friends, and co-workers… not LESS!

Let me be quite clear. I have nothing to gain by “saying” I have fibro. I don’t receive any money from pharmaceutical companies (though they get plenty of mine)! I have been known to complain about the corruption of pharmaceutical companies, the expense of their drugs, and their ridiculous profit margins. I am not a lobbyist, pharmaceutical sales representative, or a person who stands to gain financially in any way by speaking out against this heinous article.

By the way, the reason I have identified myself as a fibromyalgia patient is that my doctor diagnosed me with it. He then referred me to a specialist (rheumatologist) to confirm OR rule out fibromyalgia. The specialist confirmed that I have it.

It is excrutiatingly painful! Cold weather, in particular, aggravates my fibromyalgia symptoms. Where I live, we had the pleasure of sub-zero (Fahrenheit) weather in the last few days (I am not referring to wind chill either). Temps like these cause unspeakable pain for me. There are times it hurts to give my husband or child a hug. Sitting in a chair for too long can result in increased pain. The list goes on and on...

An article that sets out to discredit a valid illness (recognized by many physicians, despite what was implied by the small number of apparently cherry-picked doctors that were quoted in this article) is reprehensible. This article is medically inaccurate and, quite frankly, just plain irresponsible journalism.

The article was offensive and potentially has hurt/will hurt many lives.

No one is more game to read an article proving the greed and corruption of pharmaceutical companies than I am. However, slamming an entire illness that’s well-recognized by most health care professionals hurts the millions of patients with this very real illness. Slam pharmaceuticals all you want! Please just make sure when you do so that the article is properly fact-checked. The doctors you quoted as insisting this illness is not real are in such a minority. Why spin a story to fit a category (i.e. “beat up the pharmaceutical companies”)? Why not just present the facts? The doctors’ opinions you quoted are not the norm.

I strongly believe the New York Times should print an apology and a retraction. Also, it should run articles with accurate information from doctors whose views aren’t so obviously out-of-step with the vast majority of doctors.

When someone is chronically ill, every day is full of challenges. The fibromyalgia patients I’ve had the privilege of meeting are better than most at “adapting” to adversity, illness, and pain… despite what the doctor you quoted said.

Please consider using more care before printing articles that will be read by many in your widely-circulated newspaper.

Thank you,

Jeanne

My thoughts are with this man who is grieving the loss of his wife but also rising up to create awareness and foster understanding of fibromyalgia, chronic fatigue syndrome, and chronic pain!!

His video will help others. Perhaps he'll even get to discuss what happened in his wife's situation with a much wider audience such as Oprah's.

This man's courage in the face of such tragedy is helping other people to comprehend how profoundly fibromyalgia and related illnesses can affect patients and their loved ones. I believe he is doing a great service by posting this video.

Related articles/previous posts from my blog referencing fibromyalgia and illnesses correlated to it/co-existing conditions:

Sunday, October 12, 2008 Endometriosis Blog: Vulvodynia And Vestibulitis, Launch Of Polish Website About Vulvodynia

Monday, October 6, 2008 Endometriosis Blog: Fibromyalgia Awareness And Resources For Endometriosis Patients Affected By This Commonly Co-Existing Condition


Sunday, September 7, 2008 Endometriosis Blog: NEW YouTube Video Clips! Endometriosis, Chronic Illness And Other Topics Of Interest!!

Monday, September 1, 2008 Endometriosis Blog: Fibromyalgia Awareness

Monday, August 11, 2008 Endometriosis Blog: Check Out Newly-Added Co-Existing Illness/Chronic Illness Links in "Frequently Visited Sites" At Bottom Of Homepage!!!

Saturday, June 21, 2008 Endo Blog Spotlight: Interstitial Cystitis, Endometriosis, and Co-existing Conditions/Chronic Illnesses

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Second video from Lisa's husband:
Husband's Quest/Lisa's Story

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

Endometriosis Blog: Interstitial Cystitis & Endometriosis

In a follow-up to the Friday, September 19, 2008 post "Endometriosis Blog: Spotlight On The Interstitial Cystitis Association!!", I'd like to include a link to an article about endometriosis and interstitial cystitis from the "IC Disease -- Life with Interstitial Cystitis, Vulvodynia, Incontinence, & Other Bladder Conditions" website.

Here is the main link for this site:

http://icdisease.today.com/

Please see their post using the link below. I think it underscores much of what we have been talking about regarding interstitial cystitis and endometriosis.

Link to "Illnesses Similar to IC Disease: Endometriosis"

http://icdisease.today.com/2008/05/29/illnesses-similar-to-ic-disease-endometriosis/

Many women, including myself, have endometriosis AND interstitial cystitis as co-existing conditions.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

Endometriosis Blog: Spotlight On The Interstitial Cystitis Association!!

Since so many readers of this blog have interstitial cystitis as well as endometriosis and since the illnesses have been correlated in studies, I would like to spend some time today on interstitial cystitis.

Founded in 1984, the Interstitial Cystitis Association (ICA) is the authoritative source of interstitial cystitis (IC) information in the United States.

The ICA:

+ Provides the most comprehensive & up-to-date information on IC

+ Offers IC patients, their families, and friends support

+ Educates the medical community and the public about IC

+ Represents patients and advocates for research funding

+ Provides pilot research funding to find effective treatments and a cure for IC

Since I'm on the email list for The Interstitial Cystitis Association, I receive wonderful updates on interstitial cystitis on a regular basis. The one I just received, however, is special enough to warrant some extra attention. It is full of information on what's happening in the interstitial cystitis world.

I'll include the link to it in a moment but first I'd like to explain a bit about my personal experience as an interstitial cystitis patient. As an interstitial cystitis patient... I know firsthand the unbearable pain it can cause! I also know that it's often misdiagnosed or under-diagnosed. (It took 12 years and 3 urologists telling me I didn't have interstitial cystitis for me to finally find a pelvic pain specialist who said, "you definitely do have IC"!)

The interstitial cystitis treatment regimen he has me use isn't always super-convenient but it is well worth the effort because it really reduces the severity of my symptoms significantly!! (In addition to taking an oral prescription that reduces my symptoms, I self-catheterize at home to administer what's called a 'bladder instillation'. Essentially, the medications (there are two of them) that are instilled into my bladder (temporarily) are helpful for me for controlling my symptoms (in combination with the oral medication therapy).

Annual Report of The International Cystitis Association: A Year of Transformation

http://www.ichelp.org/Portals/0/AnnualReports/2007AnnualReport.pdf

In this report, you'll hear that there has been a "changing of the guard" at ICA:

Vicki Ratner stepped down and the ICA welcomed a new Executive Director. After almost 25 years as the ICA’s guiding force, Vicki Ratner, MD, stepped down from her positions as ICA President and Chief Medical Officer. The ICA is profoundly grateful to Dr. Ratner for her tireless efforts on behalf of IC patients worldwide. Her work has had direct impact on the quality of life for all people with interstitial cystitis.

Barbara Gordon, MBA, RD, is the new ICA Executive Director. Drawing upon a wide range of healthcare and managerial experience, as well as a deep understanding of the special challenges confronting people who suffer from chronic diseases, Gordon fully embraces the goal of the ICA to give hope to countless interstitial cystitis patients around the world.

Several themes emerged in the International Cystitis Association's report.

These are some of the words they used regarding the past year for ICA: transforming, embracing, advocating, increasing awareness, empowering, appreciating, ensuring...

Research programs---

Some key points made in the research report cited in the above link include:

+ Research confirmed that IC doesn't travel alone, and that patients often have other problems such as irritable bowel syndrome and fibromyalgia.

+ Researchers explored the cost of IC and found it to be much higher than that of many other chronic illnesses such as peripheral neuropathy, low back pain, fibromyalgia, or rheumatoid arthritis.

+ Many innovative treatments for IC were further developed this year. Oral medications, bladder instillations, external and internal stimulator devices, and hands-on interventions advanced along the pipeline, all with the potential to provide better IC symptom relief.

Personal Impact:

Researchers from the National Opinion Research Center (NORC) at the University of Chicago presented the first results from the NORC/ICA METRIC epidemiology survey at the American Public Health Association’s 135th Annual Meeting and Exposition in Washington, DC.

The study was based on nearly 3,000 responses to a 28-page survey that gathered information on IC patients’ life experience.

The study found that:

40 percent of respondents reported low self-esteem as a result of IC

42 percent believed that IC caused them to “miss out on life”

31 percent admitted that IC led them to have suicidal thoughts

22 percent noted that IC has caused them to lose close, meaningful relationships

66 percent said IC had negatively affected intimacy

71 percent noted pain during sexual activity

Patients Have Record Impact on Capitol Hill:

“Because of the efforts of IC patients, policymakers on Capitol Hill are recognizing and more aggressively addressing the challenges chronic pain patients face from a fractured healthcare system that limits access to the multimodal therapies patients need and from the Social Security Administration’s bureaucracy in granting disability benefits. Our advocates have also helped legislators recognize the need to influence the direction of federal research so that NIH is investing in future therapies and cures for these intractable conditions,” said Government Affairs Consultant Libby Mullin.

Here is the contact information for the ICA:

Interstitial Cystitis Association
110 North Washington Street
Rockville, MD 20850
800-HELP ICA (800-435-7422)
www.ichelp.org

Thank goodness for all of the great work this organization does. It helps so many people!

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

Deirdre's Brilliant Comment Has Resulted (Unknowingly) Into a Full-Blown Endometriosis Post!

Hi all!

An enlightened reader of our new endo blog wrote an inspired AND inspiring comment to my June 26 post "Endometriosis Patients Get Their Fair Share of Stress!"!!!

It was so inspiring to me that I was sure I'd run out of character space in the comments section. Soooo, my response to Deirdre's remarks is below. To read her short but very inspiring feedback/comment, see the the June 26th archive file for "Endometriosis Patients Get Their Fair Share of Stress!". Here is my response to Deirdre's post to the 6/26/08 article I posted. This is from 6/28/08 and is doubling as a fresh post by me for today:

************
************

Hi Deirdre!

I’m glad you found us! Welcome to the new blog. :)

Thank you for mentioning the Center for Endometriosis Care located in Atlanta, Georgia. I do now remember seeing their website a few years back when I was very heavily into researching endometriosis on the Internet! I will have to pull up their site and refresh my memory! I do remember they had a helpful library section that I haven’t visited recently. I will definitely have to “take another look” at their site, now that you have reminded me about them! Maybe the library area I’m remembering and the educational articles you talked of are in the same part of the website? I can’t remember but I will definitely check it out. Thanks for the great idea for another helpful link! (If you page through my archives, you’ll find one of my earliest posts on this blog had a number of web links). This one wasn’t one of them; I had forgotten all about it. I’m glad you jogged my memory!

Yes, I have known about the OBGYN.com site for awhile.

See the link to it:

http://www.obgyn.net/.

You know some great resources)! :)

The 'http://forums.obgyn.net/endo/' section, in particular, focuses on ‘endometriosis in general’:

http://forums.obgyn.net/endo/.

As you mentioned, there is a cool forum available within that endo section. I remember posting back & forth on the OBGYN.net message boards years ago. I’m pretty sure that site is where I had gone through a phase of reading/posting tons of stuff on OBGYN.net (using the endometriosis message boards) over 10 years ago. (I remember the timeframe because I just celebrated my 10 year wedding anniversary and it was before that when I used to spend lots of Internet time searching for endo data).

Thanks for mentioning this too! I actually just pulled up the main starting page for www.obgyn.net and if you click on “select a topic” in the top right corner, a pull down menu appears.

In the http://www.obgyn.net/ pull down menu if you click on Endometriosis Zone, it will route you to ANOTHER cool website:

http://www.endometriosiszone.org/.

It's a neat site too.

Thank you for mentioning OBGYN.net!

I just stopped this mid-post to check my archives section… I wasn’t sure if I had listed OBGYN.net in early June (as intended) or not. I did not list www.obgyn.net in my June 2, 2008 article on endometriosis links: "Endometriosis and Endo-related Links You May Want to Check Out" but now our blog readers will know about it anyway thanks to you, Deirdre!

Thank you again for reminding me of how much awesome info is available over the Internet. When I was diagnosed in 1992, I didn’t even own a PC yet and if there was decent endo info available then by Internet (???) I’m sorry to say I sure wasn’t reading it!

I had gone to my local library in 1992 and they had NOTHING on endo. Not a word. The librarian even looked for me. No luck. (It was a very good library normally too). Times have changed.

It was in Barnes & Noble in the self-help book section that I found a listing in the very back of a women’s health book for the Endometriosis Association phone number: (1-414-355-2200). They now also have a website http at:

http://www.endometriosisassn.org/


This led me finding a local Endometriosis Association support group near me (the endo support group active in my area at that time). I was quite shy then (hard to believe, I know!!!) and quite nervous about calling a stranger to inquire about the endometriosis support group BUT I did it! (THANK GOODNESS)!!! My need and desire for support,help, and info overcame my fear of calling a stranger about my "endo story" and asking about the the endometriosis support group.

Through the local EA support group I was introduced to real live human beings besides me who had endo! IT WAS SO AWESOME TO TALK WITH PEOPLE WHO REALLY “GOT IT” !!!!!! It was absolutely refreshing and a huge relief to make that connection with others!!

IMAGINE: An entire room with women who had also been suffering in silence, like I did, UNTIL they reached out and found some of their fellow endo patients somehow! Our meetings didn’t have very many women but had PLENTY for effectively sharing engrossing “endo stories”!!!) I’ve learned that a support group of 2 can accomplish as much as one with 20. (I’ve been to meetings of both sizes). my friend Cathy taught me that "2 people makes a support group". She was right! I began my endo support group in August 2001 this is so very true!

As long as exchange of information is happening, it is ALWAYS worthwhile to network with fellow patients (of any illness) any way one can do so: in person is awesome if you can get it, phone works well too, email is outstanding, message boards & forums are super… Books are certainly a wonderful source too. No one loves books more than I do.

The thing is that when you interact with another patient BACK & FORTH and truly EXCHANGE ideas & info… it is a whole new level of support than simply reading a book without also having that more tangible connection. Comparing notes on doctors, treatments, success stories, losses, etc. really HELPS so many! I have learned SOOOOOOOOOO much about alternative medicine from my support group members that it's not even funny.

The beauty of blogging and giving feedback posts on endo blogs is that we can have an exchange while you are in the comfort of your own home even when you’d be too sick to find/make it to a support group meeting. I’m not saying anything can replace a support group meeting. However, blogging is increasingly becoming an important tool for reaching out to others for various reasons… including endo blogs.

It was in either 1992 or possibly 1993 (?) that I found my first endo support group. (I was diagnosed in 1992 after 10 years of not knowing WHAT I had)! For me… the rest is history! I started “surfing the Net” in 1995 and have been hooked since. I am really grateful to Endometriosis Association for the springboard of info I got from that organization in 1992.

So, again, thank you for reminding me about www.OBGYN.net because it is a well-known/reputable site in the endo community.

There are many endo patients who experience both endo and migraines. Many women in my current and past endo support groups have trouble with migraines. While I have no personal experience with migraines, I know from others that hormones can definitely be connected with migraines!

I have acupuncture treatments done regularly. While I personally have had acupuncture done for other medical reasons than migraines, I personally still do hand out “Traditional Chinese Medicine for Migraine” brochures (that I obtain from my acupuncturist’s waiting room area, with his permission, in short stacks at a time for giving to my endo support group). I’m not sure who the author/maker (?) of that brochure is and I can’t check now because I ran out of them. (I try not to completely ‘clean out’ my acupuncturists' waiting room brochures of ALL its brochures. So I do run out of brochures sometimes between our monthly endo meetings. Although it can be tempting at times to "hog them" because I take good care of my endo support group)! Ha ha.

Seriously, though, it may be a brochure affiliated with a product (Chinese herbs) or may not... I recall it being a brochure that was not specific to my acupuncturist’s office but was specific to migraines. I believe it was called “Traditional Chinese Medicine for Migraine”. If I remember to get more the next time I’m in I will try to remember to post the author/company that made the brochure but acupuncturists do treat migraines as a general rule of thumb. I distribute the brochures to my support group members at meetings since so many women have both endo and migraines!!

For women with endo (or anyone with migraines), acupuncture is certainly worth investigating! Please see my June 4, 2008 post Alternative Medicine Is Amazing! AND various YouTube acupuncture video clips (available right here on this blog!) if you (or anyone you know) is interested in learning about acupuncture. ACUPUNCTURE DOESN’T HURT! I CAN ATTEST TO THAT PERSONALLY! I even know of children who will attest to that. I delayed trying acupuncture for years over a fear of needles and now I wish I had tried it much sooner!

My licensed acupuncturist uses very thin Japanese-style needles. They DO NOT hurt and I am extremely sensitive (skin sensitivity and internally) compared to just about anyone I know. If I can do acupuncture with no problem whatsoever, I doubt if anyone out there would find it painful. I find it extremely relaxing. It even puts me to sleep sometimes!!! Acupuncture is MORE RELAXING THAN SLEEP to me. (I have sleep apnea and fibromyalgia and I really mean that quite literally!) I do not get restful sleep (except at acupuncture).

The YouTube clips cycle through on acupuncture, alternative medicine, endo, pelvic pain, infertility, laparoscopy, etc. The cycling of the clips is done by YouTube so you may have to be patient for the acupuncture clips to appear but when it is their turn to pop up, they will do so.

To view endometriosis-related YouTube video clips (including those on acupuncture) just see the “Pink Arrows to Open Slideshow. Random Videos will Cycle Through. Not responsible for content!” section in the right sidebar of my blog. If you look in the right (light pink background, medium pink text) sidebar, you’ll see what I mean. HINT: The videos occasionally collapse between cycles/groups of various topics. This is normal and when the videos are loaded they will re-appear on your monitor automatically. You don’t actually 'click' on the arrows as I originally thought to open the slideshow (I thought that clicking helped when I first created this blog but I’ve discovered that YouTube controls that part in their programming code for the slides).

Last but not least… I appreciate you sending the site of Dr. John R. Lee:

http://johnleemd.com/.

I had not heard of it before now and I did not yet have time to read through it BUT I did a quick peek at it -- just long enough to see that it looks interesting (and in line with the notion of alternative medicine options... i.e. things OTHER THAN just “drugs and surgery only" for treating endometriosis patients.

I am not a medical professional. I ask all readers of this blog to refer to the disclaimer at the very top of my homepage for this blog for more info on this.

Sorry about that interruption, Deirdre. Whenever I mention a site for a specific medical professional or treatment option I do my best to make it clear so my endo blog readers know that I don’t have personal experience with or knowledge of the person/treatment, etc. (in this case, I guess that would be Dr. Lee’s teachings, site, or any endorsed products)... I will look at his site about natural hormone balance, natural HRT, and bio-identical hormones. I will also ask my local endo group support group co-leader if she is familiar with Dr. Lee. (My endo group co-leader is a great resource for “natural hormone replacement therapy/HRT” vs. “traditional HRT” vs. “no HRT” at all and I’m sure she’ll find the site interesting too.

Finally, Deirdre… I would like to extend my sincere thanks to you… for stopping by and providing a number of interesting links and pieces of information! You gave me so much “fuel” with your brief comments that I am devoting this post to what we’ve discussed!!! Your references have inspired me to create this new post that will refer readers to that somewhat older related post on our 27-day-old blog. :)

Oops. I just realized this probably won’t fit into the comment board. I may very well make this the actual "Deirdre post" post itself!!!

THANK YOU SO MUCH for an outstanding comment/feedback post/actual post!! I most certainly hope that you re-visit our new blog SOON (and often!)… You are clearly very well-informed about resources (and on everything from websites & links… to hormones… to “migraines and how they are connected to endo patients”!)

You made my day with your posted comment! You have no idea how much I have enjoyed replying to your comment. Also, as I said… your comment has inspired me to make a (this?) brand new post and the posts will reference each other for even more to see/stumble upon in this vast world we call the Internet. We’ll catch more readers by posting in TWO spots on such important topics/links than just ONE!

THANKS, Deirdre!!! Enjoy the remainder of your weekend! :) (I need to learn how to program smiley faces the "right way" in these comment boxes. I use them a great deal)!

Deirdre's initial comments (before mine above) are also listed below in response to the article that I posted called "Endometriosis Patients Get Their Fair Share of Stress..."

Thanks again,

Jeanne

************
************
______________________________________
From: deirdre [mailto:noreply-comment@blogger.com]
Sent: Saturday, June 28, 2008 4:47 PM
To: endendo@frontiernet.net
Subject: [Jeanne's Endo Blog] New comment on Endometriosis Patients Get Their Fair Share of Str....

deirdre has left a new comment on your post "Endometriosis Patients Get Their Fair Share of Str...":

For any women with endo who find your site, this is an amazing place - the Center for Endometriosis Care in Atlanta

centerforendo.com, also look under ''educational articles''

and a chat board

http://forums.obgyn.net/endo/ENDO.0806/date.html

also, the pill and other things can lead to low progesterone, which can cause migraines

check out johnleemd.com

Publish this comment.

Reject this comment.

Moderate comments for this blog.

Posted by deirdre to Jeanne's Endo Blog at June 28, 2008 4:46 PM
________________________________________

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

National Suicide Prevention Hotline/Lifeline Information

As you have seen from the previous post, endometriosis pain can reach critical and dangerous levels. I have heard over the years of women who have committed suicide (women who had no other illnesses besides endometriosis).

Here is information for ANYONE who EVER feels ANY suicidal ideations. The info is from a website for the National Suicide Prevention Lifeline at:


http://www.suicidepreventionlifeline.org/.

"The National Suicide Prevention Lifeline is a 24-hour, toll-free suicide prevention service available to anyone in suicidal crisis. If you need help, please dial 1-800-273-TALK (8255). You will be routed to the closest possible crisis center in your area. With more than 130 crisis centers across the country, our mission is to provide immediate assistance to anyone seeking mental health services. Call for yourself, or someone you care about. Your call is free and confidential."

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

Endometriosis Patients Get Their Fair Share of Stress!

Endometriosis Patients Get Their Fair Share of Stress!

I am leaving soon for a fun-filled day of adventure. Yes... it is medical-related. I'm afraid I do not have time to elaborate much since I can't be late!!!

I will say that I'm thrilled to have seen we now have readers from several other places outside of the U.S. I have seen New South Wales, Glasgow, Mexico, Australia and others on my live traffic map!!!! This warms my heart because one of my goals is to reach out to people about endometriosis and chronic illness... and not just people in the United States!!!

So... welcome to ALL of our blog readers! This is Day 26 of my endo blog and I am still very excited to connect with others with similar interests.

I wish anyone reading this peace, well-being, and minimal or no pain if possible. Please keep checking back. I promise to post some more interesting stuff than this. I am in a crisis mode this week trying to stay out of the hospital. I promise you there are good articles to come. So please keep checking back regularly. In the meantime, please read through my archives so far. I only started blogging June 1, 2008 but there is lots in the archives already.

Peace!

This article was ORIGINALLY posted by Jeanne this morning via "Jeanne's Endo Blog" at www.endendoat.blogspot.com. It has since been modified and re-posted.

Due to technical limitations of the blogging software (or my lack of knowledge of a way to do it), I was unable to erase a comment I made in response to Yaya’s comment (her feedback is in comment #1 from 9:16 pm below). After replying to Yaya, I reconsidered my wording and thought it best to delete my response to her comment.

I didn’t see a way to delete my comment back to Yaya without deleting the original post too. I have reposted the original post AND Yaya’s comment (exactly as she worded it) is in comment # 1 below).

Therefore, the above post is identical to the original with the exception of this portion about time of day.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.