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Showing posts with label Endo Awareness Month. Show all posts
Showing posts with label Endo Awareness Month. Show all posts

3/13/2009

'Jeanne's Endo Blog': How Do I Thank Jannie Funster For Her Hard Work?

Wow! I got an email today from my buddy Jannie. I don't know Wordpress (yet!) but I am guessing that adding a petition link such as the one Jannie has added would be a challenge. She didn't just link to the petition any old way. Check out her blog at the top right "under the eye" to see what I mean...

Click here to see Jannie Funster's awesome petition link with an eye-catching visual!

Is that cool... or what?

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

3/12/2009

"Jeanne's Endo Blog" Thanks "Yaya Stuff" And "My Journey With Endometriosis"

Thank you to My journey with Endometriosis for posting the endometriosis awareness petition!!

Also, a belated but very heartfelt thank you to Alicia of Yaya Stuff for starting the petition-link-posting trend!

Will you be next to post it?

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

2/27/2009

'Jeanne's Endo Blog': March is National Endometriosis Awareness Month

I saw this link thanks to Sandy Robinson listing it on the Fighting Fatigue blog.

It's so great to see endometriosis awareness increasing!!! This link gives the history on when National Endometriosis Awareness Month officially started being observed.

March is National Endometriosis Awareness Month
Endometriosis is a chronic condition that affects over 5.5 million women in the United States and Canada.

March is National Endometriosis Awareness Month

If you pull up the above link, you'll see that you can comment to it (as I did there) and you can "share" it (as I just did by posting the link above on Facebook).

Let's all work together to increase endometriosis awareness. Reading the link above, commenting, and linking it to Facebook probably took me all of 3 minutes total. Won't you join me in sharing this link?

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

2/23/2009

"Jeanne Endo Blog" Honors Donna Jackson Nakazawa, Author Of The "Ill In A Day's Work" Article In The Feb 2009 Issue Of More Magazine!

I'm so happy; I feel like I just won the lottery!

I just found a blog for Donna Jackson Nakazawa!




She is the writer of the phenomenal chronic illness article that launched our endometriosis awareness campaign back on February 16, 2009:

Monday, February 16, 2009 Jeanne's Endo Blog: How MORE Magazine’s Chronic Illness Article Knocked My Socks Off & How Happy I'd Be If We Can Work Together To Get Endo Covered!



Donna Jackson Nakazawa is also the author of a book: "The Autoimmune Epidemic: Bodies Gone Haywire in a World Out of Balance -- and the Cutting-Edge Science that Promises Hope"

Upon discovering her blog, I felt compelled to write her and thank her for that amazing article referenced in my 2/16 post:

"Ill In A Day's Work"

Here's my letter to Donna Jackson Nakazawa, posted on Donna's Blog
--->
Hi Donna!

I am SO happy I found this site! If your ears are ringing it’s because I have been singing your praises on my blog!

Your “Ill in a day’s work” article for More magazine’s February 2009 issue is PHENOMENAL!!! I cannot say enough about it. I’ve written on my blog about it! I posted my first vlog (video) entry and even held up your magazine and just plain raved about the article.

Having numerous chronic illnesses, many of which are autoimmune conditions… I LOVED your thorough article!

The first chronic illness to hit me was endometriosis, at age 13. I’m 40 now. So I have dealt with endo for 27 years.

In that time, I’ve participated in local (in person) endo support groups since 1992 (after my diagnosis, which took TEN years from onset of symptoms). I started an endo group, as a volunteer support group leader, in my current community in 2001. I started my blog last June.

My career went up in smoke several years back. I was far too sick to function.

I have heard hundreds of women’s stories… Not just with endometriosis but with others illnesses (many connected in studies to endo)… For example, fibromyalgia, IBS, interstitial cystitis, Reynaud’s Disease, multiple chemical sensitivity (MCS)… [I have all of the above diagnoses... and other conditions].

My blog is about chronic illnesses. Mariela Azcuy of Meredith Corp. has emailed me publicizing your chronic illness article after seeing my blog.

Since then, I have organized a letter-writing campaign to find a way to get endometriosis featured in the national media. It affects 89 MILLION women and girls. It can affect careers, marriages, fertility, severe chronic pain… It has a huge impact on patients and their families.

I have had 7 surgeries for endo. I have too many other illnesses to count at 1:40 am when I should be asleep…

I just want to thank you for your More article so much!!! I literally held up the magazine in my vlog post on 2/16 on my blog… and asked people to buy it for YOUR article.

I would be honored if you’d take a moment to check out my blog post *about your article*!

I don’t normally post links in blog comments and I’m NOT trying to be spammy but I’m listing the specific link that will route you to the More magazine post with your article:

http://endendoat.blogspot.com/2009/02/jeannes-endo-blog-how-more-magazines.html

If you read the blog comments section, you’ll see where I talked about the fact that I would “jump up and down” if we in the endo patient community were fortunate enough to have a writer well-educated about chronic illness (such as you) write a feature on endo!

Endo affects 89 MILLION women & girls. That’s more than breast cancer!

I would be deeply honored if you’d read/view my blog entry from 2/16 about your article.

THANK YOU (!!!) from the bottom of my heart for that More article! Looks like I need to add your book to my very large reading list. There are never enough hours in the day for me to read my mountain of books.

Take care and I’d be thrilled and honored if you check out my blog.

Also you can email me directly at:

endendo [at] frontiernet [dot] net

I just wrote it out to minimize spam. I learned awhile back that the Google robots and such find online posted email address but this helps. Just remove the spaces, replace [at] with the @ sign, and replace [dot] with a period… and delete the spaces.

I very much look forward to connecting with you!

Jeanne


Please join me in thanking her for this outstanding article and please also join me in asking for her assistance in helping us find a national voice for endometriosis, which affects 89 MILLION women and girls worldwide... more than breast cancer.

Let's thank her on her blog and let her know how much we appreciated her article on chronic illness! Let's let her know that we would be deeply honored if she'd consider writing an article about endometriosis!

In honor of the upcoming March Endometriosis Awareness Month, let's make our voices heard and spread awareness!

Related links:


Monday, February 16, 2009 Jeanne's Endo Blog: How MORE Magazine’s Chronic Illness Article Knocked My Socks Off & How Happy I'd Be If We Can Work Together To Get Endo Covered!

Friday, February 20, 2009 "Jeanne's Endo Blog": *ENDOMETRIOSIS AWARENESS* Letter Campaign Example!!


Thank you.

This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.

HAVE YOU SIGNED YET?? Please Sign Endometriosis Awareness Petition Below! Awareness YEAR-ROUND!