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This organization, CureTogether, has chosen 3 conditions on which to focus their research initially:
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ENDOMETRIOSIS
VULVODYNIA
MIGRAINES
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You heard me right! CureTogether has picked 3 illnesses to research initially and
every single one of them affects multiple women in my local endometriosis support group!!!
Who knows how many
endometriosis patients worldwide
ALSO are affected by
vulvodynia and/or
migraines??? I know of one local support group member who has
all three of the above!! This launch of a new medical research organization with such fantastic priorities is fabulous and exciting news!!!
Their website (also launching today!) is:
http://www.curetogether.com/You could be one of the very first visitors to their website simply by clicking the link above. If you do visit their site, I'm sure you'll be as thrilled as I was when I first laid eyes on it!!!
These conditions directly affect so many women (and men too, of course, in the case of migraines). These conditions also affect the families, friends, and sometimes even employers of the patients who are
directly impacted by
ENDOMETRIOSIS, VULVODYNIA, and MIGRAINES. These are serious conditions for the patients who have them. This is a massive milestone: a medical research organization that is specifically targeting illnesses they view as underfunded and in need of research... like endometriosis!
This past weekend, I had the pleasure of talking with Alexandra Carmichael by phone (see her photo above this post). She and I talked about her organization, CureTogether. Alexandra Carmichael and her husband, Daniel Reda, have Co-Founded this medical research organization. If you view the "Our Team" section of their new www.CureTogether.com website, you can read their bio information. You will also be able to read about Clarence Chandran, Advisor and Chairman of Chandran Family Foundation Inc. AND about Dr. Ursula Wesselmann. She is Professor of Anesthesiology and Neurology in the Department of Anesthesiology/Division of Pain Management at the University of Alabama at Birmingham. She is also a Scientific Advisor for CureTogether (www.CureTogether.com).
This organization, CureTogether, is just launching today and it already boasts a talented group of individuals who care deeply about helping endometriosis, vulvodynia, and migraine patients!! It was all I could do to wait from this past weekend until today to post this article because I am so excited! I was thrilled after viewing the site. I was psyched after Alexandra Carmichael emailed me to announce her organization's launch on July 15, 2008. Finally, I am absolutely ecstatic after speaking with Alexandra by phone this past weekend. Her passion for this research is outstanding and I cannot wait to see what this organization accomplishes. It will surely be a great deal, based on what I have learned in just the past few days.
It is with great honor that I previewed the www.CureTogether.com website just a few days early. It was exciting to see what the site already had before the organization had even launched. I can't imagine the heights this organization will reach after speaking with Alexandra Carmichael, viewing the site, and exchanging numerous emails with her this past week.
It is an HONOR to announce CureTogether to the world from my humble little "endo blog".
PLEASE take a moment to look at CureTogether's great website and see what all the buzz is about! I sure am glad Alexandra Carmichael stumbled upon my "Jeanne's Endo Blog" a few days ago and emailed me about CureTogether's launch! I would like to thank her for informing me about CureTogether!
I welcome any comments from my readers here on my endo blog (just click comments at the end of this article to post your comments/feedback). Also, I think you can comment on CureTogether's website directly with feedback. (I believe it will also accept your comments online because their site took my comments the other day pre-launch). I'm hoping my local endometriosis support group members will give CureTogether a warm welcome too!
Please post your feedback both here AND at their site if you can.
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.
