I had previously written here about our conversation regarding interstitial cystitis. (We specifically discussed self-catheterization and bladder instillations as a treatment method). Please see related links on IC at the bottom of this post.
The latest edition of Cafe ICA (November 2008 Cafe ICA, Volume 8, Number 11) was published today.
To sign up for the Interstitial Cystitis Association's Cafe ICA (a free online monthly news digest), just click here:
When I was first diagnosed with interstitial cystitis, I joined the Interstitial Cystitis Association and found them very helpful and informative!
To learn more about the Interstitial Cystitis Association and/or to become a member, just go to their website:
The ICA has more in-depth articles in addition to the free monthly Cafe ICA digest mentioned above. So check out their site for more info.
Here is today's mention of this blog from the Cafe ICA online digest!
(November 2008 Cafe ICA, Volume 8, Number 11)
Endometriosis Blogger Makes the IC Connection
Just as bloggers have transformed political news, they are also transforming health news. Newspapers, magazines, and TV have reported much more on IC in recent years. But now, IC and the ICA are also getting reported on in the blogosphere.
Blogs by savvy patients help raise awareness every day and get good information out to those like them, like Jeanne's Endo Blog. The blog is mainly about endometriosis but also about associated conditions, including IC. In fact, a substantial share of IC patients have endometriosis (estimates range from 30 to 85 percent) and vice versa. And sometimes, IC is misdiagnosed as endometriosis. This blogger knows both well, and on September 19, 2008, she put the spotlight on the ICA and its work. She took note of the ICA's Annual Report for 2007, a year that brought much more awareness that IC doesn't travel alone. Now, major research effort is focused on the connections between the conditions in the hope of homing in on the cause and better treatments. She has also blogged about the PBS documentary "Interstitial Cystitis: Private Pain," Interstitial Cystitis Awareness Week, and Bladder Health Month.
In addition, Jeanne keeps her finger on the news pulse of many other related conditions, such as fibromyalgia and vulvodynia, and on awareness and support efforts from all over the world. Often, she just plain inspires, pointing her readers to moving art, poetry, and thoughts, such as this:
"Life's most urgent question is: What are you doing for others?"
-Martin Luther King Jr.
Please note that there are over a dozen links on IC on this blog but here are a couple of related links:
Friday, November 7, 2008 Endometriosis Blog: Conversation With Penny Allen Of The Interstitial Cystitis Association About Bladder Instillations And Self-Catheterization
Wednesday, October 22, 2008 Endometriosis Blog: Interstitial Cystitis Awareness Week October 20th-26th, 2008 (RE-POST)
This article was posted by Jeanne via "Jeanne's Endo Blog" at www.endendoat.blogspot.com.